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Old 02-20-2009, 11:16 PM #11
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Default neuropathy

I think that we who suffer are being denied the research needed. Every clinical trial I can find is for diabetic neuropathy. Doesnt anyone want to figure out what is causing the debilitating pain for the idiopathic?
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Old 02-21-2009, 04:06 PM #12
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Default Not Sure...

Im not sure if I have nueropathy, but I do have issues with my feet particularly left. No one really knows why my feet will suddenly swell, and then bruise when there is no injury that they can find on any test. My foot went numb for several months and then I gained feeling back, but when the feeling came back it felt almost like gout but there was no gout. It burned so bad I could hardly stand it. I used to fall alot when it went numb and it seems to be back on the path to going numb again. I do have some back issues and they say it can be linked to a pinched nerve but I dont see how a pinched nerve would cause swelling and bruising with the intense burn to numb sensations. Its so strange, and no doctor seems to know what is happening. I am reading more on nueropathy to see if I tend to fit into its rather vague sypmtoms list. Frustrating
Does anyones foot ever feel "cold" even though to the touch its the same temp as other foot? What is that???
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Old 02-22-2009, 11:02 AM #13
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Default

Quote:
Originally Posted by spkar0517 View Post
.........Doesnt anyone want to figure out what is causing the debilitating pain for the idiopathic?
Idiopathic means they can't find a cause.
If they can't find the cause they won't address the
unknown origin of a pain. Gotta find out why before they'll bother.
Bummer, but 'Nature of the Beast'.

Iris,
The cold feet feeling, but normal to touch is a typical PN Sx.
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Old 02-22-2009, 02:23 PM #14
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Quote:
Originally Posted by lynxgal View Post
I have balance problems, vertigo, tingling, numbness in part of one foot and on and off numbness in my hands and arms. My balance problems can go along with my vertigo as well as without the vertigo.

I have a confirmed bilateral vestibular dysfunction that is apparently linked to my PN. Demylination of the vestibular nerves is sometimes seen with PN or so I have been told by my PN specialist.
Have you had DNA blood testing to confirm CMT? Curious.
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