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#1 | |||
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I know this is a really old subject for most here but could you please review my vitamin in take list thus far and comment. (See attachment) .. Thanks a bunch!
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Marty Idiopathic PN - diagnosed 1999 |
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#2 | |||
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Wisest Elder Ever
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I have some questions, Marty.....
I don't think that Biotin # is correct. Is it 5mg? I have never seen 50mg Biotin anywhere. What form is the magnesium? Is it oxide? What are the blanks at the bottom? Are you expecting them? If so, the P5P will duplicate the B6. I would stop the B6 if possible--(is it in a mixture combo product? )
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#3 | |||
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Quote:
That's 50mcg of Biotin. It's in the B-complex I'm taking. I fixed that in my excel sheet, thanks! It's "magnesium oxide" ...... is that ok? All the ones at the bottom that dont have amounts are ones I'm still researching. So thanks for the tip on the P5P! Is is necessary to take this or is the b6 ok? Of the ones I don't have amounts for are these necessary????????? Thanks for your help mrsD!
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Marty Idiopathic PN - diagnosed 1999 |
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#4 | |||
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Wisest Elder Ever
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Magnesium oxide is not appreciably absorbed... it doesn't work.
It is a good laxative tho...because it remains in the bowel and works that way. I have a magnesium thread that explains it: http://neurotalk.psychcentral.com/thread1138.html Since you have had this for a LONG time...I'd try the acetyl carnitine and others (omit the P5P for now), for 2 months or so to see what happens. When you use fixed combination vits, you cannot control the doses very well. For example: Thiamine B1 works only in really high dose 300mg a day. Or its newer version benfotiamine. The 100mg in your b-complex is just not enough. I would cut back on the b-complex to 1 a day. I'd increase the B12 to 5000mcg a day for 2 months.(on an empty stomach) I'd try acetyl carnitine(1-2 grams starting at 500mg a day and increasing slowly) and CoQ-10 (300mg of quality enhanced absorption) for 2 months. I'd change the magnesium to a better form. I'd add 200mg of OTC thiamine 100mg daily in divided doses. I'd try r-lipoic acid 100mg a day This would cover mito damage, and metabolic problems with dehydrogenase enzymes. I'd get tested for Vit D levels...which when low contribute to chronic pain. See this new video just released as to how important this is: http://neurotalk.psychcentral.com/thread92116.html The acetyl carnitine, and CoQ-10 will cost you. Most of the others are not so expensive. But if you really want to seriously try supplements you will have to do MORE. If you have an kidney damage, or other health problems you should consult with a doctor to see if what you do is safe. But at this point I think 100mg of B6 is unnecessary and may be problematic for you.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#5 | ||||
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(See below questions in green)
![]() What form should I get and where can I get it? Quote:
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Did I waste my money on the complex? Here's what's in it: B1 (Thiamin)-50MG B2 - 50MG NIACIN 50MG B6 50MG FOLIC ACID B12 50mcg (I also take 1mg of methy but will bump that up to 5mg) BIOTIN 50MCG PANTOTHENIC ACID 50MG
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Marty Idiopathic PN - diagnosed 1999 Last edited by Marty SLC; 07-07-2009 at 02:15 PM. |
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#6 | |||
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Wisest Elder Ever
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Mito refers to damage to the mitochondria of your cells. The mitochondria produce energy so you can move/live etc. Without them we cannot exist. They are old vestigial bacteria that were incorporated into mammalian cells eons ago. The technical term for them is symbiotes. We provide food and shelter for them and in return they provide energy and life.
They are damaged by drugs and toxins. In fact the new research into aging and many diseases that appear with age, and vaccine injuries are pointing to mito damage. Certain nutrients enable mito functioning. That is why with your long term problems, you should try to support them. Benfotiamine research always used high dose. At least 300mg to start. One poster came here recently and used 600mg a day. If you go to PubMed(the link at the top right of these pages) and type in "benfotiamine neuropathy" you can see all the research there. Benfotiamine is just a fancy form of thiamine which stays in the body longer. (it is fat soluble). It used to be mega expensive, but has come down in price within the last year. My magnesium thread covers all the mag info. I am not going to retype it all here. http://neurotalk.psychcentral.com/thread1138.html I prefer SlowMag generic for its cost and because I am sensitive to the laxative side effects. But many people use other forms like magnesium glycinate. Aim for 1/2 the RDA or 200mg elemental. You just have to read that thread. It is too complex to go over again here. If you want magnesium glycinate...go to iherb.com Mag64 or MagDelay 64 generic of SlowMag can be ordered at any pharmacy, WalMart carries it, and so do some Costcos. Costco is where I get mine, at the pharmacy counter. (very low price there!) 2 a day of these...Mag64 (SlowMag) Some people do not do well with B6. Even though it is rare to get side effects which are neuropathic BTW, it still can happen at 100 mg a day for some. 50mg is plenty for most people. I am cautious and conservative about this. I have a B6 thread: http://neurotalk.psychcentral.com/thread30724.html You just have to read up.... so you understand what things do. Consider it "homework" LOL ![]()
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | two.sides (07-13-2009) |
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#7 | |||
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Quote:
mrsD, You suggested taking 300 mg of CoQ-10 for 2 months. What do I do after the 2 months of taking? Also out of the above what is the most important other then the B-12 to start with? I'm having a hard time keeping it in so I'm going to introduce all the above slowly. I'm thinking it's the Magnesium citrate causing me the looseness. -Marty
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Marty Idiopathic PN - diagnosed 1999 |
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#8 | |||
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Wisest Elder Ever
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How much magnesium are you taking? At 1/2 the RDA you should not have much looseness.
Two months is the typical time period to see some improvement. Even small/tiny gains, means that the supplements are working. At 300mg you should see/feel something at 2 months. If not, it would be your decision to go longer. Use a quality CoQ-10 that says it has enhanced absorption. Remember you have PN for 12 years! Supplements for you are iffy for this long..some cells may be dead. (numbness would suggest dead cells). Pain is better, meaning some improvement may still be possible.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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