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-   -   Today I..... (https://www.neurotalk.org/thoracic-outlet-syndrome/108-today-i.html)

DDayMBB 08-24-2006 02:57 PM

Today I.....
 
Am just thankful that we can start relating back and forth to each other !!! God knows we were a family, disfunctional as it may be share something others just can not understand!

DDayMBB 08-24-2006 03:04 PM

unto all I hope all is going well with you and yours !!!!

Horizontal One 08-24-2006 03:17 PM

....I am happy that our forum family can chat and seek advice and comfort from our friends. I send my best wishes to everyone and hope that they are doing OK.

Take Care
Love
Hx

DiMarie 08-24-2006 10:57 PM

There's no place like home, if it be BT 1 or BT 2. Thank you for bringing supportive friends together again. My computer went for good during the time of the BT tragedy. I am checking email as I can with the old 233Mgz computer. Takes me an hour to open and read send off a reply so I struggle for time. Paying bills takes forever.
Missed you all dearly!
Di

Jomar 08-24-2006 11:31 PM

Hi all
 
whew long time no read!

Di and I emailed each other on and off - but she's about the only BTer I have "talked " with since the crash - well I did do the Flash chat til it crashed too
had some good times back then- sems like so long ago lol

hope all of you are well as can be
Jo

Edelweiss 08-25-2006 01:49 AM

Today I...
 
am glad, thankful and happy that my beloved "today I..." thread exists again.
I missed the daily exchange of thoughts, state of health, troubles, good things to share,.....
Thank you for informing me troughout the weeks by email!!!:)
I wish you all a nice and invigorating weekend.
Greetings
Barbara

DDayMBB 08-25-2006 04:31 AM

Today I.... Do hope all have a godd painfree day !!!

Mark-n-Goober

DDayMBB 08-25-2006 06:04 AM

Today I.... would like to add a link to this forum for new members and those of us who may have skimmed past the sit previously... it basically explains what is and some symptoms one might have

http://www.nismat.org/ptcor/thoracic_outlet/

DDayMBB 08-25-2006 06:22 AM

I would like to take the Liberty of submitting some information that was written by a skilled, professional and understanding Dr, Dr Sanders from Denver Colo

http://www.ecentral.com/members/rsanders/

DDayMBB 08-25-2006 06:27 AM

Today I would like to say it is nice seeing some names from the past.... Horizontal One, DiMarie, Jo55,law and Barbara so far that I have seen... Hopefully the rest of our distant family will find there way over here !!!!!! At the moment I have got to take a break from the computer, starting to get sore so I pass along......................

My Best to all !!!!!!!

Mark-n-Goober

dawn3063 08-25-2006 11:54 AM

Hi Everyone
 
I'm so glad to see that BT is back.. I missed the communication we all had as a group.. Today I want to say.. Hello and I missed you all..
Have a great weekend..
Dawn ;)

DDayMBB 08-25-2006 01:07 PM

Welcome back Dawn and I dito you it sure is nice to have the board back... seems as though it was a life time in between :)

Mark-n-Goober

law76 08-25-2006 01:34 PM

Today And Last Night, Not Kidding You Have Stayed Up All Fricking Night W/no Sleep With Computer Probs From Nine Thirty Last Night To Noon Today. I Am Going To Take My Lollipop And Sleep.....OH -THE PAIN IS UNBEARABLE!!!!!!!!!!!!!!!!!!!!!!!!!!!

DDayMBB 08-27-2006 07:14 AM

Law surely hope you start feeling better, but glad those lolly-pops help! I was wondering if anybody else had this happen.... when I fall asleep and drop the pillow that I usually hold my ar straightens and my last 3 fingers curl up more so than normal. When I do wake my arm is straight my fingers bent and I require my wife to message my fingers to straighten the and her to help me bend my arm a few times before I can do it by myself and at times while she is doing that I am in actual tears! I have not had an appointment with Dr Togut, though have talked with him and he said it has to do with the Fleor nerve/muscle!

Unil later I wish all a pain free day !!!!!!!!

Mark-n-Goober

Jomar 08-27-2006 01:36 PM

Today i
 
am kind of sad about all the bashing on the forum feedback- suggestions are great- but many are just complaining and not offering ideas for improvement.
I'm wondering if their postings will have repercusssions when we return to BT1???
I hope not.
I think the banned ones are inflaming the others- i think they forget that anyone can read here.
Oh well life goes on.

DDayMBB 08-27-2006 07:52 PM

jo55 "" am kind of sad about all the bashing on the forum feedback- suggestions are great- but many are just complaining and not offering ideas for improvement.
I'm wondering if their postings will have repercusssions when we return to BT1???
I hope not.
I think the banned ones are inflaming the others- i think they forget that anyone can read here.
Oh well life goes on. ""

Jo I am not bashing anyone, I am just glad to see many face from the past and as far as complaints... well I for one will listen to complaints and should there be a way I can help another that would be great, however should I NOT, I hope there is somebody out there that can ! are we not here to try and help each other!
My thoughts go with you and everyone... Mark-n-Goober

Jomar 08-27-2006 08:35 PM

I know you aren't Mark- I didn't mean here in the TOS forum-
in the feedback topic section.

Krankie 08-27-2006 10:31 PM

Today I..........
 
got DDayMBB's e-mail about the new forum...I've just been so busy with the kids this weekend......I want to say Hi to all and can't wait to hear what everyone has to say....will give all a heads-up when I have a little more time to talk...just needed to say a quick HI---HI




KRANKIE

Edelweiss 08-28-2006 07:05 AM

Today I
 
am online again and I am glad to see that the "today I" family is growing!!

Since thursday my both arms hurt more than "usual" - nevertheless I spent the weekend in Vienna where we enjoyed the museums, restaurants and cafés.

I hope you can have a painfree or a light-pain day today!
Barbara

Horizontal One 08-28-2006 08:33 AM

Today I..
 
say a big hello to everyone else since last time I posted...
Today I also feel sad for a non forum friend who is awaiting possibly quite bad health news..I send her my wishes....
Today also means a week til see Pain Consultant...I cannot wait..

Also...send all of you my best wishes....and a hug

DDayMBB 08-28-2006 03:50 PM

Hriaontal One it would be a pleasure for yor friend onr to say hello to sll! for as and as we a aaaaaaaaaaaaaaaaaaaaaaaaaaaaaaai do think there are lots worse on tha a lot who post here.... My thought and wishes go onto all not just us in the TOS
Mark-n-Goober

dawn3063 08-28-2006 10:55 PM

Today I,
 
Want to wish everyone a good night and a painfree day tomorrow.. Now off to bed I go to try and catch this headache before it becomes too nasty..:(
((Hugs)) Dawn ;)

Edelweiss 08-29-2006 01:42 AM

Today I
 
wish a good morning to all - and I hope it will be a good day today: without pain, without sorrow and without troubles.
All the best,
Barbara

tshadow 08-29-2006 05:53 AM

Hi kids...

boy did I miss each and every one of you.

Mark, I am so glad to see you're back to your welcoming duties - you are our "greeter" of choice! smooch and hug.

Also, very sorry to hear of your AM finger problem. I do not have that per se. But sometimes the hand is such a claw, and hurts so bad, I leave it that way. I will pray that this will pass for you and ease up.

To every single one of you, big big kisses and hugs!

Gromlily 08-29-2006 10:55 AM

Today I ..
 
too want to thank Mark for being our unofficial greeter!! He has really been diligent about keeping this thread going!!

I am also grateful for the others who are diligent to this forum, who continue, year after year to try and lift others up with words of encouragment, personal experiences, and by sharing their own TOS situations so others can learn and be helped in their own healing process.

This is a wonderful family of people!!!

God Bless All,
G~

DDayMBB 08-29-2006 11:23 AM

T Shadow, what I do as far as greetings is just a way to keep in touch wih everyone over here. Like I had said prior, I consider all here an extended family with one thing in common **TOS** ! Regardless if you are mega rich or popper poor we know that money can not change our status. In fact I think it can teach all to be more humble in in how we treat one another !!!
Go Bless one and all and hope all arw safe !!!

Mark-n-Goober

Jomar 08-29-2006 11:45 AM

mornin' all
 
Good to see more of the gang trickling in here.

I still wonder how the ones that haven't found this place yet are doing?

The days are getting shorter and the weather is starting to change for fall already here.
take care all
J

Stardust 08-29-2006 11:49 AM

Hi everyone
 
Just want to say hi and how wonderful it is to hear from everyone!! Although I didn't post regularly on the old forum because I really have to limit my computer use, I always checked in as often as I could to see how you were all doing. I really missed hearing about everyone this summer!

Mark, ditto on Gromlily and Tam's comments. You're the best!:)

DDayMBB 08-29-2006 06:28 PM

I did not do anything here that anyone else would not have done! We have always been strong together and if we did not have an answer to a question that we did not know there would always be somebody there could help out. I am fortunate to have found this site myself and think it is nice that we all share our weaknesses and also our strngths! Has anybody had any new outcomes with there TOS? I myself have found out that my workmans comp judge has put a deadline on all the stalling their judge has been doing and he must have any and all dpositions in by Sept. 19th, unfortunately, I found out after him getting this info in it may take another month or two to before a decsion is reached. I have been without any for of income for a year, which is an insult to me as I started work at the age of 13 picking apples and always had a job regarless... my first car was purchased by me at the age of 16 as well as paying my own insurance. I never expected at the age of 42 to be in this boat, however I am in the boat with one oar and spinning around in circles!

DDayMBB 08-29-2006 08:18 PM

I was invovled in a work related accident on 4/2 in which my truck rolled backwards and smashed into a SUV behind me, how exactly how it happaned I do not know but it took place. In the matter my back smashed inti the door frame, I mentioned it ti both of my boses but down played it because the company was taken over by a nre company on 4/1.... by the 7th I could not take it and went to see their occupational doctor after taking 2 PT appointmants got worse. I met with on of their neuosurgeons, on the first visit he spaent 10 minutes with me and said it should clear up within 6 weeks. The second time I seen him he wanated to do immediate surgery.
Upon receiving home I typed my symptoms into my computer search engine and each time an it ket coming up with a brahial plexus injusy more over TOS... after several searches I came up with a doctor in my area, Dr A Togut and he told me he cold not be sure what it was over the phone, however he would be be willing to see me an should it not be TOS, he would help me in finding a doctor who could help me and if it was not TOS he would help in finding me who could treat my condition. After a three hour interview with him that day he came up with the diagnosis of Bi-Lateral Diagnosis of TOS.
The New Company sent me to see one of their indepedent doctors, after spending 10 min with her reviewing my condition, I than spent 5 min with the wife would have the permission that my wife would not be permitted in with me and in his orders felt he had something to hide !!!
My basic wish would to be rid of some of this pain and return to some form
of normal life! I am not planning on doing any sort of doing any moto cross.

Until all My Best to all,
Mark-n-Goober

























I am sure that there are a lot of people who have been in the same situation. I am not looking for a free ride, I am just wanting to be treated by a Dr. who is tops in the field of TOS. I have not had the money to fly out to colorado, but found a way out to see Dr Sanders and after a 2 1/2 to 3 hour interview he came up with a diagnosis, this after being twisted, turned injected in various places he came up with the the diagnosis of bi-lateral TOS due to a work related accident.

Edelweiss 08-30-2006 06:13 AM

Today I...
 
want to be a magician and if it was be possible I would let dissapear the pain and do magic for Mark`s case with the companies.

Unfortunately, I can`t and instead I send all positive and energetic thoughts that the situation will be better soon.

All the best
Barbara

Edelweiss 08-31-2006 07:55 AM

Today I..
 
have to admit that it is not my day: feel tired, in pain and don`t have the mood to work.
Tomorrow will be the wedding of my cousin and I love familiy meetings (not at all, but there is nothing to do, I have to go there:p ).
So I will be back online on monday and I wish a very agreable, painfree and good time to all readers.
Barbara

Jomar 08-31-2006 11:44 AM

hello friends,
i added some search info for how to find some of the old BT1 info up in the sticky/useful link thread.

but if the cached results have more than 1 page - i don't know how to get to the rest of it.
If you click on the next page in the cached results it will go to the present BT announcement page.

I found this info in one of Liz/wittesea posts maybe she has some more ideas on that part of it.
have a nice day all.

trix 08-31-2006 12:04 PM

Today I
 
want to say hi to everyone. I am still waiting for surgery, and if at all possible I seem to be getting worse as time goes by. Just to refresh memories, I have bi-lateral TOS as a result of a motor vehicle accident on Aug. 28, 2006. I have done the physio and chiro. I still see my chiro 1x per week, and he is the only reason I function at all. I feel the best when I keep my hands and arms curled up closely to my chest. This unfortunatly is leading to some amounts of muscle atrophy.

My lawyer developed cancer, and has passed my case to another firm. I am very nervous about this as he had come so highly recommended, and I don't know anyone at this new firm.
TamaraShadow, any advice on questions to ask the new lawyer?

I can't drive anymore, and am finding it next to impossible to run my daycare. If I have to pick up one of the children, I find it really painful. I want more than anything to get better.

Jomar 09-01-2006 12:03 PM

Hi trix,
as much as possible try to keeep some amount of movement - keeping arms curled in is not to good for circulation or maintaining muscle as you mentioned.

slow and gentle movements to keep your range of motion as best you can.

Have you tried the laying on the floor thing?
I'll repost it here-

For passive gentle stretching - try
Laying on a rolled up towel or foam cylinder {approx 6"x30"}
or flat on floor if that is more tolerable for you
let gravity drop shoulders and open chest
{pectoral muscles } and use diaphramatic breathing to relax and release into the stretch

lay the length of the spine on the cylinder /or floor with a small pillow for head & neck if needed {pillow was recomemended for me because of the c-spine issues}

just relax and let shoulders drop and chest and armpits will release and stretch - place arms at a comfortable position 15-20 minutes as often as you can.

If you have mild low back troubles put a pillow under knees or raise them.
If you have any spine problems check with doctor before doing this.

I need to go do this myself - haven't been able to since we had everything crammed into living room while redoing kitchen.

Gromlily 09-02-2006 01:03 PM

Today I ...
 
Want to say Hi to Barbarea and tell her how sorry I am she had a bad day the other day, I hope the wedding goes/went well and she does not spend days recovering it as we TOSers sometimes do...

To Trix I send my best wishes and a hope that she can find an attorney that can help her get through the quagmire of W/C to aplace where she can receive the proper care and get on the road to healing...

Patience dear one, I sympathize with what you must be feeling and going through, just be patient, because the stress that you are describing can wreak havoc on your body and recovery. Is their someone else who can lift the children for you? Do you have anyone working for you that can do that? Be mindful that any thing that HURTS as you are doing it can be a RE-INJURY... AS much as you can, avoid doing anything that hurts!! Even physio. exams and p.t.!!

I had inappropriate P.T. at the beginning that worsened my injury!!
Dr.Ellis and Peter Edglow say NOTHING should cause pain!! Good luck ... and God Bless...

Hello to Jo55, and wishes for a good day.... I am grateful you are here to help us all on this forum...

Mark... SOOO SORRY TO READ YOUR STORY!!! It is very similar to mine!!! All I can say is Hang tough !! You have done nothing wrong !! You deserve PROPER CARE!!! I refused to let them push me away and demanded tests I new would diagnose my condition once and for all. W/C denied my requests for tests and my Private Insurace paid for them on a GREEN LEIN and gave me positive results for Bilateral TOS. A conclusive test that I am aware of is a specialized MRI/MRA of the brachial plexus area.

I don't know the rest of your circumstances Mark, I just hope and pray you can find a way to have this test peformed. Maybe Tam can help or has she suggested anything??? I will keep you and your wife in my prayers...

Which reminds me, the only thing they can ask your wife not to participate in is a pysch. eval. she can be present, take notes and audio tape EVERYTHING else you go for...AND SHE SHOULD!!!! You need a witness because these Quacks are the enemy!! They don't want to pay for your help!! They want to save money at your expense!!

Unfortunately you really have to FIGHT TO GET HELP!! The last thing you want to do when you are in as much pain as we experience!! So again, hang tough and don't take their attitudws and actions personally. WE know you are a honest man!! Who cares what they think!!

I wish I could write more today to others but I can't sit any longer, my arms feel like they will fall off...:(

But wishes are extended for a wonderful weekend (under the circumstances, as horrible as they might be) to all...

Hugs and Hugs,
G~

DDayMBB 09-02-2006 05:01 PM

For all, it is great to see you all around here.... My typing ha bss been rally of anf as much an I TRY IT GETSN o betterI have to pass along my thought ad love for all of oir ,embemmmr, can nor wait ro ro ro all of you shsi !!!!!!!!!!!!!!!!!!!! Mark-n-Goober

Horizontal One 09-03-2006 09:37 AM

Mark..really hope that things are sorte dout positively for you and that you have a better day, day by day....

Thinking of all of you

Today.....just popped in to say hi and wish everyone well. I am not so good again...and cannot wait to see pain cons tomorrow. My SIJ is really painfull., my knees have joined in...look like little old lady getting up....and I won't even mention my arms.

Thinking of all of you....that reminds me cannot remember who was doing RN training? Memory abysmal....anyone hope she is doing OK.

Take care.

X

Jomar 09-03-2006 07:49 PM

Butterfly123 was in school for nursing - but haven't heard from her in a long time.
I hope she is doing well- I guess she must be or she'd have posted something.

dawn3063 09-03-2006 08:21 PM

Boy Oh Boy... Today I am so sore.. We have had to move somethings around in our house to accomidate my husbands new saltwater fish tank.. Even though he does the majority of the work...I still had to rearrange the little things.. Now my neck and mid back are so sore among other things.. I see Pain Killers in my very near future like now...:p
I hope that everyone is hanging in there..
Mark, I hope your days get better..
Jo, I hope your chicken on the barbie is scrumpshise (I probley spelled that one wrong) :o
Gromlily, Trix and Barbara.. I hope the coming week is kind to you and you find pain free days ahead..
If I missed anyone else.. I wish you all a great and painfree labor day and lets not labor too much.. :eek:
((Hugs)) Dawn ;)


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