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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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11-04-2009, 10:58 AM | #21 | ||
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jim |
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"Thanks for this!" says: | loretta (11-06-2009) |
11-06-2009, 04:19 AM | #22 | ||
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I have been thinking of you and was wondering if you are still plagued with nausea? A med that has helped me so very much is an anti-anxiety med called lorazepam. Because it calms the nervous system down, I'm able to take less pain meds. I feel the same way about the compassion and encouragement from all our friends here. Thank you for your sharing how you feel about the comfort we all receive here. Take care, loretta with soft hugs |
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11-06-2009, 04:32 PM | #23 | ||
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Kim, and others who have recently joined:
Welcome one and all. Please know that you are free to vent here if you need to do that. We all get frustrated from time to time and just need to let loose. We are here to lend an ear and, perhaps, give a kind word or maybe even just the right advice. There may be a few of us who are medical professionals, but mostly we are “plain folks” who are discussing our own experiences. We may forget to include that caveat when we post, and you should always discuss any medical advice with your doctors first. Everyone has different conditions and reacts differently. Also, never ever be afraid to ask. There are no dumb questions. If you do not understand something that is being discussed, please ask for a clarification. If you are confused, so is someone else. Finally, we do not care about writing style. We are not here to judge you like your seventh-grade teacher. Express yourself. As long as you get your idea across, do not be too concerned about whether you are a good writer. We do not give out Pulitzer prizes. Glad to meet you, even though it is through less than happy circumstances. Mike |
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11-06-2009, 09:35 PM | #24 | ||
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just a quick note to let you know that we are hoping you are experiencing the least level of pain. As each day goes by, there is new hope for research to find an antidote to this agony that errupts our sympathetic nervous system. Don't be afraid to vent or ask anything of us. No one will turn you away or think negative thoughts of you. As I said before, we are all rowing the same boat together and, If we are to reach the shore of healing, we have to communicate our wishes and desires of what direction to steer the craft. As wind is to a sail, so is our hope of relief. Hope your having a better day and your mood is bright. Peace be with you, mellowguy |
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11-07-2009, 07:28 PM | #25 | ||
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Thanks for your words of encouragment! I really appreciate everyone's advice and genuine concern. I'm aware that RSD affects the entire family, not just the one with it; and I feel so guilty and selfish for easily sharing my pain with my loved ones. It's very refreshing to have an outlet to vent where everyone else understands completely. I feel like I have found a home because of you! Hope you have a wonderful, pain-free day.
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11-07-2009, 08:21 PM | #26 | ||
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11-07-2009, 09:12 PM | #27 | ||
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hang in there Kim.
have you tried the fentanyl patches? rolfing? phenergan 25 or belladonna for the nasea? Mike Quote:
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11-08-2009, 06:59 PM | #28 | ||
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Thanks for the response. No, my unsympathetic pain doc won't prescribe them for me. I was taking Phenergan 25, my nuerologist took me off because of muscle tics, but I started them again; I would rather twitch than vomit. I go for my Independant Medical evaluation next month, and after that I am switching to a more caring and understanding pain doc. (W/C insurance games). I realize that we all need to make choices to become semi pain-free, so to me, this is the lesser of two evils. Hope all is well with you and yours. Kim
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11-24-2009, 01:15 AM | #29 | ||
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YaY! Morphine?
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11-24-2009, 02:46 AM | #30 | ||
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Loretta...Thank you with all my heart! Your advice has helped me tremendously! I thank you for the ideas and your belief in me; and in all of us.
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