[msdrea83]

So since like october i've been on a self strike from taking my ketamine reguarly because i'm having a ketamine infusion on the 29th... and am hoping it'll lower my tolerance some... but i'm flying to NM next sunday, where its gonna be WAY colder than here in cali, and probably some snow.... so i was wondering what you guys would suggest i ask my doc for for during the trip so i'm not staying inside/in bed the whole week i'm there till my infusion...

[AintSoBad]

Andrea,

Just discuss it with him, (did he tell you to stop the ketamine now?) and see what he prescribes... I wouldn't begin to know what to suggest.

I wish you the very best, though on your trip, both your safety and the outcome!

pete

[CZZ74]

Hi, wish I could help but I really have some questions.

i was curious what your regurlar oral dose of ketamine is?
and what symptoms increased when you stopped taking it.?

As far as the weather change, I'm afraid it will probably be very diffucult for you, i would bring leg and arm warmers , a really warm hat etc. every thing you can to stay warm so you can possibly go outside, I guess Im assuming you have cold rsd llke me. I have to wear these things in florida.

I hope the infusion goes well for yiou please let us know. I am not sure I would have stopped my oral ketamine as It would have just increased your base, giving you ahigher platform for the in fusion. But im sure there are two therories to that.

My very best to you and good luck with the weather as well. sincerely, cz

[Mslday]

Hi Andrea,

I'm assuming you are on an anti-inflammatory? You might want to consider bumping up the dose for the flight. Flying can be tough on us with RSD so it's important to stay on top of your pain during the flight, mostly during the take off and decent when the cabin pressurization is being adjusted. It will help you on the other end.

We got snowed in here this weekend and I keep myself wrapped up like an Eskimo. Despite all that my foot still turns ice cold and the only thing that will help is direct heat application, hot wax, hat bath, hot water bottles, heat pads etc. It's become quite a juggling act now with hot flashes in the picture LOL.

I started a trail of N-acetylcysteine (NAC), a month ago. A study from the Netherlands indicated that it was beneficial for those of us with cold RSD. Generally speaking I seem a little warmer and able to tolerate cold better, but I'm not certain that is from the NAC. I picked it up at my local health store since it is not a controlled medication. I'll keep trying it for a couple more months. Here is a link to that study. Ask your doctor what he/she thinks.

http://www.ncbi.nlm.nih.gov/pubmed/12670672


Good luck with your next infusion, please let us know how you do with it all.

MsL

[msdrea83]

ketamine has been the only pain med i've regualry taken for almost 4 years now. up until i'd say this past september i was taking 2-3 mL at 20mg/mL, so like 40-60mg, every 2 hours as needed. then in sept after my 2nd infusion stopped working (after 5 months of full remission) i was taking 2-3mL at 50mg/mL, so like 100-150mg every 2 hours as needed.

the intensity of the burning feeling has increased, along with the hypersensitivy... although i'm not sure if that's from stopping the k or cause of the weather change from 90 degree weather through mid oct to pouring rain and 30 degree weather...

my first infusion a year ago i recieved 1000mg of k over 4 hours- i was supposed to be asleep, but because i had the tolerance i was still holing conversations- i was the only patient he had that was previously on k regualarly so he was a bit perplexed. so the 2nd one i recieved 2000mg over the 4 hours and was knocked out. my liver panel did elevate quite a bit, but i have also had cirrohsis of the liver since i was 16 months old, so its not surprising, they returned to my normal levels about 2 weeks later tho.