Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 12-16-2009, 06:35 PM #11
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lostmary lostmary is offline
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Join Date: Apr 2007
Location: fredericksburg, Virginia
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lostmary lostmary is offline
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Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
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Gitta
I know it is hard, but hang in there. I have rsd in my back. It started in my left foot and now covers both feet, legs, half a butt, (right half), and the center of my back to the shoulder blade. It can move and spread. I know it's hard to say that this pain is rsd. The burning and all that goes with rsd is like no other pain. I've had all the meds, 2 spinal cord stimulators, which caused the spread to my butt and back. I've just finished the Pain Pump trial, which is where they put a cathater into the spinal fluid in the back and hook you up to an external pump which puts morphine or duliudid into the spinal fluid. I'm getting my perm. one place Jan 19th. I wish I had never tried or had the scs. it caused the rsd to spread. The pain pump seems to be wonderful tho. I had 5 days of trial in the hospital. When we found the meds that worked for me, my pain went from a 7-9 a day down to maybe a 2. It's amazing how it stops pain. I've had rsd for over 5 years, and I feel that once I heal from surgery, I can go back to doing things like riding my horses, and maybe even work part time. I'm excited.
By the way, Denmark is the MOST BEAUTIFUL play on this planet. They also have the most beautiful people in the world. This comes from someone who has been lucky enough to live in Asia for 10 years, and Europe for 9.

Hugs to you and your son
Mary
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