Originally Posted by loretta

Hi keep smilin, Yes, that is a symptom for many of us with RSD. My involuntary movement in my legs came several years into RSD, after it became full body. RSD is an autonomic disorder, meaning involuntary symptoms of various organs. My Doctor put me on neurotin, and it stopped the involuntary jerks, jolts, spasms. I was on 3200 mg in order to stop the symptoms. Mine got worse to include electric jolts, jerks, that would occur during sound sleep and go thru my body and thru my brain, so violent it would raise head off the pillow. But, like I said, they stopped with the high dose of neurotin. I later changed to Lyrica, 400 mg. which worked better for my nerve pain. Both caused weight gain.I went off gradually over a year ago, and the symptoms did NOT return.
Anxiety is a part of RSD. RSD affect the Limbic System of the brain that controls anxiety, depressions, So I take lorazepam to help control being anxious. It works well. I also take Cymbalta 120 mg. for depression and anxiety. It also has component to help with nerve pain. I just saw my Dr. yesterday, he is a neurologist, psychiatrist and pharmacologist. We discussed my meds yesterday-I really feel his knowledge of RSD and meds have made a huge difference in my health-am in a better place than in past years. I am completely mobile, except one hand is partially frozen-delay of diagnosis and treatment. I wasn't diagnosed for 4 years..
For me, physical therapy and massage therapy, swimming, water exercise -86 water temp. have keep me mobile. I've had this 15 years and now full body and internally.
Many of us withdraw from groups of people, but it is important to be part of society, and not isolate. For me, the anxiety meds are essential. It's important to remember not to drive following taking certain meds. I wait 4 hours before driving-doctors orders. So afternoons are my window of time to drive, have appointments, etc.
Hope the best for you. your friend, loretta with soft hugs