Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-08-2010, 12:27 AM #1
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tjack tjack is offline
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tjack tjack is offline
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Default Won on 3 counts with BOLI filing!

Hi Everyone,

Wishing you all a Happy New Year!
Unfortunately I started mine out a little shaky. Had a minor injury at work that turned into a major flare thruout my body. Amazing how a simple bruise can turn into a major pain!
Continue to battle for ergonomic accomodations recommended by my physical therapist and my employers own ergonomic specialist request on my behalf for accommodations at work to no availe. They are demanding that I sign a Hippa release, releasing all my medical records for the next 5 years. Of course I refused!
I did however win on 3 counts on my first filing with BOLI. This is good news. Employer was found guilty of 1. Not entering into the accommodation process, 2. Breaking the ADA laws by not accommodating my disability, & 3. Retaliation. Suppose to be in negotiation process but they are choosing to ignore any attempt so far.
All of this makes an already stressful job 100 times more stressful. Just dealing with the RSD is stressful enough. Not sure how long I can hang on to my job. It's a battle for sure, but got to survive and keep my medical insurance and a roof over my head.
Thank you all for a place to come. I live alone and sometimes ya just need a place to come.
Praying for a better year for all humanity!

Love to all

TJ
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"Thanks for this!" says:
AintSoBad (01-08-2010), allentgamer (01-08-2010), dreambeliever128 (01-08-2010), Jomar (01-08-2010), loretta (01-08-2010)

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Old 01-08-2010, 06:21 PM #2
loretta loretta is offline
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loretta loretta is offline
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Quote:
Originally Posted by tjack View Post
Hi Everyone,

Wishing you all a Happy New Year!
Unfortunately I started mine out a little shaky. Had a minor injury at work that turned into a major flare thruout my body. Amazing how a simple bruise can turn into a major pain!
Continue to battle for ergonomic accomodations recommended by my physical therapist and my employers own ergonomic specialist request on my behalf for accommodations at work to no availe. They are demanding that I sign a Hippa release, releasing all my medical records for the next 5 years. Of course I refused!
I did however win on 3 counts on my first filing with BOLI. This is good news. Employer was found guilty of 1. Not entering into the accommodation process, 2. Breaking the ADA laws by not accommodating my disability, & 3. Retaliation. Suppose to be in negotiation process but they are choosing to ignore any attempt so far.
All of this makes an already stressful job 100 times more stressful. Just dealing with the RSD is stressful enough. Not sure how long I can hang on to my job. It's a battle for sure, but got to survive and keep my medical insurance and a roof over my head.
Thank you all for a place to come. I live alone and sometimes ya just need a place to come.
Praying for a better year for all humanity!

Love to all

TJ
Hi TJ and Welcome to Neurotalk, We all need someone who understands and to share our feelings with. I'm so grateful, I too, have found this group of compassionate, caring friends. It would be so much more difficult to go thru alone. I have a husband of 42 years, 30 yr old daughter and son in law. They try and do pretty good in understanding. They all have done their own research, been to the Dr. with me, help in cleaning, cooking, and grocery shop.
Swimming has been one of the best things for me keeping mobile. I've read the temp. needs to be 86 degrees.
I was born and grew up in Eugene, Or. Used to love to snow ski, but those days are gone. Eugene is where I got RSD, following breast tumor surgery-benign. I wasn't diagnosed for 4 years, while living here in AZ.
I'm so sorry you are struggling with the red tape that wraps itself around the work system etc. I hope you are able to keep your job. I've lost the ability to engage in sports, and as for work, I don't do well engaging in the business, as my memory is not reliable. I try, but need to be monitored.
I actually flew back to Eugene to see a hand ortho sports injury group and he diagnosed me within a minute. The Dr. here in AZ said rheumatoid arthritis, but I knew that wasn't correct.
Well, hope the best for you, your friend, loretta with soft hugs
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tjack (01-09-2010)
Old 01-08-2010, 07:40 PM #3
keep smilin keep smilin is offline
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keep smilin keep smilin is offline
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Originally Posted by loretta View Post
Hi TJ and Welcome to Neurotalk, We all need someone who understands and to share our feelings with. I'm so grateful, I too, have found this group of compassionate, caring friends. It would be so much more difficult to go thru alone. I have a husband of 42 years, 30 yr old daughter and son in law. They try and do pretty good in understanding. They all have done their own research, been to the Dr. with me, help in cleaning, cooking, and grocery shop.
Swimming has been one of the best things for me keeping mobile. I've read the temp. needs to be 86 degrees.
I was born and grew up in Eugene, Or. Used to love to snow ski, but those days are gone. Eugene is where I got RSD, following breast tumor surgery-benign. I wasn't diagnosed for 4 years, while living here in AZ.
I'm so sorry you are struggling with the red tape that wraps itself around the work system etc. I hope you are able to keep your job. I've lost the ability to engage in sports, and as for work, I don't do well engaging in the business, as my memory is not reliable. I try, but need to be monitored.
I actually flew back to Eugene to see a hand ortho sports injury group and he diagnosed me within a minute. The Dr. here in AZ said rheumatoid arthritis, but I knew that wasn't correct.
Well, hope the best for you, your friend, loretta with soft hugs
TJ...WELCOME.. you may live alone but your not alone here..Great to meet you..AND Loretta.... you are so cool!!

Take care..KS
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tjack (01-09-2010)
Old 01-11-2010, 07:22 AM #4
CZZ74 CZZ74 is offline
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Location: Florida
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CZZ74 CZZ74 is offline
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Quote:
Originally Posted by tjack View Post
Hi Everyone,

Wishing you all a Happy New Year!
Unfortunately I started mine out a little shaky. Had a minor injury at work that turned into a major flare thruout my body. Amazing how a simple bruise can turn into a major pain!
Continue to battle for ergonomic accomodations recommended by my physical therapist and my employers own ergonomic specialist request on my behalf for accommodations at work to no availe. They are demanding that I sign a Hippa release, releasing all my medical records for the next 5 years. Of course I refused!
I did however win on 3 counts on my first filing with BOLI. This is good news. Employer was found guilty of 1. Not entering into the accommodation process, 2. Breaking the ADA laws by not accommodating my disability, & 3. Retaliation. Suppose to be in negotiation process but they are choosing to ignore any attempt so far.
All of this makes an already stressful job 100 times more stressful. Just dealing with the RSD is stressful enough. Not sure how long I can hang on to my job. It's a battle for sure, but got to survive and keep my medical insurance and a roof over my head.
Thank you all for a place to come. I live alone and sometimes ya just need a place to come.
Praying for a better year for all humanity!

Love to all

TJ
TJ, your so brave, I cant imagine how hard it is to have rsd and live alone, im about to find out though because my husband just left me. scary. Good luck with your job file for disability now it takes a long time to get it, two years in florida. I worked as long as long as i could really longer than i should have as it aggravated the rsd, but it was so hard to give up my carreer. i understand what yoiu are going through. then it just keeps getting worse, you do not get medicare or medicade which ever one it is for two years after you get disability it makes no sense. wishing you the best dc
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