does anyone have problems sleeping??? I can't fall asleep until 3ish in the morning and then, i toss and turn all night long and then I dont wake up until like noon the next day. I can't keep going on like this because I need to be up in the morning. I have tried baths, meditating, reading, sleep tapes, I take remeron for sleeping- but when i take it i sleep for 14 hours. And that is WAYYY too long I wake up feeling worse than if i didnt sleep at all. my family around me just gets frustrated with me because at night i could fall asleep about 6pm or 3am... I cant fall asleep any time in the middle. When i go to sleep at 6pm i wake up at like 3am... and then that is just too early to be up. I see my doc this week and have been suffering this problem for about 9 months, and dont know what to do from here.... any help would be nice

So sorry for your sleeping issues..it can be fustrating and a vicious circle...I take tylenol pm or something pm before bed..even take 1 pill if your sensitive..I have to also or I will wake up so It is a must for me..if that does not cut it ask your Dr. for a script..Ambien works great too even 1 pill or a lower dose..they gave it to me in the hospital and I slept like a baby..

KS

Tylenol PM also helps me when I can't sleep! I sleep like a baby with that. Try to take you Epson Salt baths, (if you take them) closer to bed time, maybe. It relaxes me, and helps me fall asleep!!!! It worth a shot. Also, when I tosss and turn last night, the last thing I want to do is get out of bed and walk around a second, but I have found that getting up, even to walk to the bathroom, helps get the blood circulating, and I can usually sleep better after.

It worth a shot!!!

Try melatonin its a like a vitamin and it wont make you sleepy it gradually gets you to sleep so you can feel refreshed in the morning.

Sleep issues are my middle name. I had this issue pre rsd and now with it when my pain is high it is even worse. My psych used to say I am on sleep meds for the size of a horse. Have you been to a psych? To me they are with better knowledge of sleep then gp or pain docs. I know it helped for a short time for me trazedone and my pain doc suggested that again for me. Have you asked about a lower dose of remeron? Be careful about tylenol pms too often because that can impact the liver.

I have tried Tylonel PM, I have tried melatonin for many years pre-rsd... Thanks soo much!!! I did the baths... its like my brain wont stop working... it just keeps going. I dont know if that makes any sense... Thanks...

Same problem here. Was on high strength ambien for a long time, but after a while I started having problems with it. I had quite a few times where I would be knocked out for a hour or 2, then have a bad flair up. I wouldnt be able to wake up completely and the pain would turn into a nasty, realistic nightmare where my rsd leg was being crushed or on fire. Been woken up by family members before cause I was screaming in pain and when they would wake me up I'd b crying and in pain, almost in shock cause I would think the nightmare was real until I could shake off the ambian cobwebs. The nightmares were really realistic and visual. Now I only take a smaller dose occasionally, when I really need to get sleep. Doesnt seem to happen unless I'm taking the larger dose regularly for a long time. I don't know how common this is...but throwing out a heads up. Now my family knows whats going on, but the first 2 times it happened I scared the crap outta them-especially the kids.

Hey Hannah,

Before Lindsay was diagnosed with RSD, she had sleep problems for three years. She went through a sleep study and they diagnosed her with sleep delay disorder. They say it is the same as a person who works a night shift. During the sleep study she woke up on average of 17 times per hour, they said it was pain related. Imagine that! I will find the web page that they gave me to help to turn her sleep around. You have to follow, it is called sleep hygiene, many of the posts have bits and pieces of the sleep hygiene. So if you follow it, you may be able to get some sleep. It takes at least a week or two to get on track.

Are you getting any sun during the day? Natural melatonin? I know that you should sit in the sun for at least 30 minutes per day. If you can't get sun, they have sun lamps. There was also a part where you should eat your meals on certain sides of the house. Like breakfast on the east side, etc... I will find more info for you. It has been a couple of years. It did work when she followed it. But, unfortunately as everyone on this board knows, sleep issues are part of this awful disease. Now she just passes out from not being able to sleep for sometimes two days at a time. If any one else would like this info, I will post it as a new thread in the next few days, and I will pm it to you Hannah...Didn't you just go through Ketamine infusions, that should have helped some. I am sorry that you have to go through this so young. xoxoxo
Sandy Here is the web site try it for a while make it work for you...Let me know how this goes

http://www.sleepdisorderchannel.com/...reatment.shtml

Norepinephrine is destroyed by COMT(catecholamine-O-methyl transferase). However, patients with chronic pain do not have adequate COMT. the only other substance within the body which is known to destroy Norepinephrine is melatonin. The problem is that melatonin is produced by the pineal gland in the presence of adequate VIP and cAMP(cyclic adenosine monophosphate), which are produced by nerves. Since these nerves are not receiving adequate oxygen, the VIP and cAMP are not being produced in adequate amounts to create the melatonin to destroy Norepinephrine. In addition, melatonin is produced after 4 PM due to the body's circadian rhythm. At approximately 4 PM, the body's blood cortisol level, blood beta-endorphin level, and blood pressure decrease. At approximate 4 AM, these levels increase. This helps explaine why chronic pain patients have insomnia and increased pain in the evening and are able to sleep better during the daytime.

Have you tried a sleep study?

experimenting, sounds like you need to find something that puts you to sleep and something to keep you in deep sleep.

I have tried all the sleep meds and they dont help me much but give me a huge hangover effect. amytrptoline has been around for years and is very cheap and is the only med that doesnt give me such a hangover,plus it is used for treating depression, pain, all sorts of stuff.

dont drink caffine after 4pm.

what is your vitamin d count? try get it above 50. you take a hydroxy25 test in your next bloodwork. try 50,000units twice a week for a few months. d2 or d3, it doesnt matter.

horrormones???your illness or your meds can affect this so make sure your testosterone and estogen are normal.

most narcotics and muscle relaxants can put you to sleep but wont keep you in deep sleep. sometimes they work for me but most of the time they dont.

when i did a sleep study i could not get to sleep so they ask me to take something that would keep me in a sleep. i took a norco10/325,ativan2mg,valium10mg,zanaflex4mg tab,dilaudid 4mg.(luckly, i no longer have to take this concocsion for sleep) this knocked me out but only put me into stage 2 the whole time. you need stage 4 to get to rem sleep which is also called dream sleep.

sometimes a glass of milk-cold is fine, works...

if you dont mind getting fat you could eat a giant carb meal. this will knock you out but wont keep you out. plus if you make it a routine you need to buy new clothes.....

Hannah, I think the majority of us have problems with sleeping. I do take most of my meds at night but someone here once posted that Hemi sync makes a CD to help. I got " sleeping through the rain" for people with pain to help sleep. I ordered it and- it was funny- my husband told me he hasnt slept like that in a long time. It does help me. I couldn't believe it. I also use the epsom salt in a foot bath or a bath before bed to relax me. If I wake i am able to get back to sleep much easier. So maybe it is a combination of all of the above. Sleep well. momof4