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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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CRPS in only half my big toe!

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Old 10-25-2011, 12:01 PM #21
birchlake birchlake is offline
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ADDITION TO ABOVE: My toes are also not hypersensitive to touch (thankfully). My CRPS reaction happens after 10-15mins of walking then, 1. heat, 2. redness, 3. swelling, 4. pain. Then I put my feet up by lying down, and it all calms down again. Pain, redness, heat, swelling all dies down and stops.

The Amitriptylene extends the period before triggering the reaction, and the redness and swelling doesn't go up so far, but still as bad in the actual toes.

I have now got two appointments booked for this coming week with CRPS specialists and I'll report back with what they say and suggest.
Wow.......your symptoms are very similar to mine. It isn't terrible when sedentary, but after about 15 minutes up and around...maybe 20, it gets very aggravated and I also get the heat, red color, swelling and pain.

Too weird! We have to stay in touch here and support each other. I'd love to be part of your blog.
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Old 10-25-2011, 12:21 PM #22
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Wow.......your symptoms are very similar to mine. It isn't terrible when sedentary, but after about 15 minutes up and around...maybe 20, it gets very aggravated and I also get the heat, red color, swelling and pain.

Too weird! We have to stay in touch here and support each other. I'd love to be part of your blog.
Yea seems very similar! I'm just putting together all my research and case notes & photos etc for these appointments.

Once I've been to see them I'll start getting a blog together specifically for CRPS in the toes, with links, articles, photo's and more detail of my case. I'll try and set it up with several accounts so you can just add what you like as and when. Then that will hopefully get some more feedback from others and their experiences/treatments specifically with this type/area of CRPS. Well that's the idea anyway! Any other suggestions are very welcome
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Old 10-25-2011, 04:51 PM #23
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My RSD started in my left hand/wrist but spread to my left foot and toes. Does that count? (lol)
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Old 10-25-2011, 05:14 PM #24
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My RSD started in my left hand/wrist but spread to my left foot and toes. Does that count? (lol)
I think that counts! **
Last edited by Chemar; 10-25-2011 at 05:29 PM. Reason: NeuroTalk Guidelines on linking
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Old 10-25-2011, 05:38 PM #25
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I think that counts! **
In that case I'll chime in on your blog...
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Old 10-25-2011, 06:17 PM #26
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Jimbo, you're in! I really like the blog idea. We can all benefit from sharing information, symptoms, meds, therapies, etc!!
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Old 10-25-2011, 06:41 PM #27
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Jimbo, you're in! I really like the blog idea. We can all benefit from sharing information, symptoms, meds, therapies, etc!!
Anytime you want me to babble on let me know...
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Old 10-25-2011, 07:03 PM #28
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Hey Jimbo, isn't "babbling" a kind of therapy? I think it should be in that category. I am convinced that there is absolute value here!

I'm excited (and so are my toes) to find others with at least similar symptoms, affected area, etc.

That is the BEAUTY of this forum.
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Old 10-25-2011, 07:33 PM #29
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My wife tells me if I didn't have my sense of humor I wouldn't have any sense at all...
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Old 10-26-2011, 03:29 AM #30
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My wife tells me if I didn't have my sense of humor I wouldn't have any sense at all...
Keeping a sense of humour is really important and I have to admit I've been struggling with that. I really kind of sunk in these past days how long-term this CRPS can be. I guess before I thought it would be something that would be easily fixed like a sprained ankle or something.

Still, got a few specialists to see so hopefully they'll come up with some bright ideas to sort it out a bit more.
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