Home Menu

Site Navigation



Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
NeuroTalk Support Groups > > >

CRPS in only half my big toe!

Reply
Page 3 of 6 12 3 45 Last »
 
Thread Tools Display Modes
Old 10-25-2011, 12:01 PM #21
birchlake birchlake is offline
Member
  
Join Date: Jan 2010
Posts: 363
10 yr Member
birchlake birchlake is offline
Member
 
Join Date: Jan 2010
Posts: 363
10 yr Member
Default
Quote:
Originally Posted by mnp2011 View Post
ADDITION TO ABOVE: My toes are also not hypersensitive to touch (thankfully). My CRPS reaction happens after 10-15mins of walking then, 1. heat, 2. redness, 3. swelling, 4. pain. Then I put my feet up by lying down, and it all calms down again. Pain, redness, heat, swelling all dies down and stops.

The Amitriptylene extends the period before triggering the reaction, and the redness and swelling doesn't go up so far, but still as bad in the actual toes.

I have now got two appointments booked for this coming week with CRPS specialists and I'll report back with what they say and suggest.
Wow.......your symptoms are very similar to mine. It isn't terrible when sedentary, but after about 15 minutes up and around...maybe 20, it gets very aggravated and I also get the heat, red color, swelling and pain.

Too weird! We have to stay in touch here and support each other. I'd love to be part of your blog.
birchlake is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mnp2011 (10-25-2011)

advertisement
Old 10-25-2011, 12:21 PM #22
mnp2011 mnp2011 is offline
Junior Member
  
Join Date: Oct 2011
Posts: 26
10 yr Member
mnp2011 mnp2011 is offline
Junior Member
 
Join Date: Oct 2011
Posts: 26
10 yr Member
Default
Quote:
Originally Posted by birchlake View Post
Wow.......your symptoms are very similar to mine. It isn't terrible when sedentary, but after about 15 minutes up and around...maybe 20, it gets very aggravated and I also get the heat, red color, swelling and pain.

Too weird! We have to stay in touch here and support each other. I'd love to be part of your blog.
Yea seems very similar! I'm just putting together all my research and case notes & photos etc for these appointments.

Once I've been to see them I'll start getting a blog together specifically for CRPS in the toes, with links, articles, photo's and more detail of my case. I'll try and set it up with several accounts so you can just add what you like as and when. Then that will hopefully get some more feedback from others and their experiences/treatments specifically with this type/area of CRPS. Well that's the idea anyway! Any other suggestions are very welcome
mnp2011 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (10-26-2011)
Old 10-25-2011, 04:51 PM #23
Russell's Avatar
Russell Russell is offline
Member
  
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Russell Russell is offline
Member
Russell's Avatar
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Default
My RSD started in my left hand/wrist but spread to my left foot and toes. Does that count? (lol)
__________________
Hope for better days.....
Russ
okska'sssini ómahkapi'si
.
Russell is offline   Reply With QuoteReply With Quote
Old 10-25-2011, 05:14 PM #24
mnp2011 mnp2011 is offline
Junior Member
  
Join Date: Oct 2011
Posts: 26
10 yr Member
mnp2011 mnp2011 is offline
Junior Member
 
Join Date: Oct 2011
Posts: 26
10 yr Member
Default
Quote:
Originally Posted by jimbo View Post
My RSD started in my left hand/wrist but spread to my left foot and toes. Does that count? (lol)
I think that counts! **
Last edited by Chemar; 10-25-2011 at 05:29 PM. Reason: NeuroTalk Guidelines on linking
mnp2011 is offline   Reply With QuoteReply With Quote
Old 10-25-2011, 05:38 PM #25
Russell's Avatar
Russell Russell is offline
Member
  
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Russell Russell is offline
Member
Russell's Avatar
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Default
Quote:
Originally Posted by mnp2011 View Post
I think that counts! **
In that case I'll chime in on your blog...
__________________
Hope for better days.....
Russ
okska'sssini ómahkapi'si
.
Russell is offline   Reply With QuoteReply With Quote
Old 10-25-2011, 06:17 PM #26
birchlake birchlake is offline
Member
  
Join Date: Jan 2010
Posts: 363
10 yr Member
birchlake birchlake is offline
Member
 
Join Date: Jan 2010
Posts: 363
10 yr Member
Default
Jimbo, you're in! I really like the blog idea. We can all benefit from sharing information, symptoms, meds, therapies, etc!!
birchlake is offline   Reply With QuoteReply With Quote
Old 10-25-2011, 06:41 PM #27
Russell's Avatar
Russell Russell is offline
Member
  
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Russell Russell is offline
Member
Russell's Avatar
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Default
Quote:
Originally Posted by birchlake View Post
Jimbo, you're in! I really like the blog idea. We can all benefit from sharing information, symptoms, meds, therapies, etc!!
Anytime you want me to babble on let me know...
__________________
Hope for better days.....
Russ
okska'sssini ómahkapi'si
.
Russell is offline   Reply With QuoteReply With Quote
Old 10-25-2011, 07:03 PM #28
birchlake birchlake is offline
Member
  
Join Date: Jan 2010
Posts: 363
10 yr Member
birchlake birchlake is offline
Member
 
Join Date: Jan 2010
Posts: 363
10 yr Member
Default
Hey Jimbo, isn't "babbling" a kind of therapy? I think it should be in that category. I am convinced that there is absolute value here!

I'm excited (and so are my toes) to find others with at least similar symptoms, affected area, etc.

That is the BEAUTY of this forum.
birchlake is offline   Reply With QuoteReply With Quote
Old 10-25-2011, 07:33 PM #29
Russell's Avatar
Russell Russell is offline
Member
  
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Russell Russell is offline
Member
Russell's Avatar
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Default
My wife tells me if I didn't have my sense of humor I wouldn't have any sense at all...
__________________
Hope for better days.....
Russ
okska'sssini ómahkapi'si
.
Russell is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (10-26-2011)
Old 10-26-2011, 03:29 AM #30
mnp2011 mnp2011 is offline
Junior Member
  
Join Date: Oct 2011
Posts: 26
10 yr Member
mnp2011 mnp2011 is offline
Junior Member
 
Join Date: Oct 2011
Posts: 26
10 yr Member
Default
Quote:
Originally Posted by jimbo View Post
My wife tells me if I didn't have my sense of humor I wouldn't have any sense at all...
Keeping a sense of humour is really important and I have to admit I've been struggling with that. I really kind of sunk in these past days how long-term this CRPS can be. I guess before I thought it would be something that would be easily fixed like a sprained ankle or something.

Still, got a few specialists to see so hopefully they'll come up with some bright ideas to sort it out a bit more.
mnp2011 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (10-26-2011)
Reply
Page 3 of 6 12 3 45 Last »

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
What is the half life of Vitamin D2? jess18 Vitamins, Nutrients, Herbs and Supplements 3 04-19-2009 10:04 AM
First Vacation in a Year and a Half !! CayoKay The Stumble Inn 36 08-26-2008 07:15 PM
The half-wit. oldsteve On the Lighter Side 0 04-30-2008 02:22 AM


All times are GMT -5. The time now is 03:29 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home