Hello my friends...

Of all things one would think I should be wiping my brow thinking..well..the time is almost here..whew..Instead my stomach is knotting up and I have jitters which began today..Uneasy feeling...less tolerant... probably nervous..what am I going to be like on that day????

And can I tell you that I poured myself over my computer yesterday..setting up a spanking (I am so dang proud..) "Savvy Chronic Pain Patient Journal" as we were instructed on our posts... Dang..I have all the right dates and everything for Dr. S... but when I mentioned I was ready to fax it to Drexel... the nice woman I spoke to said oh we don't want it to be too far back information..only since diagnosised with my RSD....it's okay..better too much than not enough I say! But must admit it took my sails down a bit.. but it's okay....

Thank you for listening to me...Kathy

Dear KS, you are going to be fine. Maybe a bit nervous but you are already doing that. Refresh me if you will, is this appointment for Ketamine? When are you going? I hate meeting docs for the first time, my history is rediculous and I am always a ball of nerves. I think what you are feeling is totally normal. Did you ever try the morphine?

I dunno, this disease is crazy, so many little things that are so aggravating, but you are absolutely right, this disease is not a disease for the weak. And when we do get weak, it is through that weakness we gain our strength. I will keep you in my prayers as always. You might be an office visit away from a cure or some relief, that is worth a little anxiety to say the least. We are worth fighting for. We do deserve some comfort, compassion and a level of dignity in our life. The disease is bad, the pain is bad, but we are not. I do alot of meditation for pain and anxiety it has really helped me out alot. But the other day, I was so twisted up with fear, that none of my coping skills were working. But, I made it through, thanks to all of you wonderful people. God Bless You. Keep moving forward, you are almost there.

Jeanie

I will be going for the 15th of March..traveling the 14th.. This is my initial meeting with Dr. S..first consult..as you mentioned our first meetings are a bit nerve racking.. I guess it could be that..just tired of having to dicuss this RSD thing one more time..but again..as you said we gain strength from our weakness..so my jitters today will be balls of fire when I finally get there..right/?.. oh and no..I still have not started the morphine... I am a chicken....

You are always so thoughtful..thank you for your post..I enjoy hearing from you..Have a good rest tonight, my friend...Kathy

Hi Kathy,
You will be fine seeing Dr. S. He is great. After you meet him you will think to yourself "Why did I get so stressed out?" He is very compassionate, funny, and a wealth of information. One thing you may want to do is to write down a list of things you want to ask him. I know I am in such pain from the ride there and all the movement that a list helps when you go to the doctors. Good luck and you will be fine. He is an amazing doctor. I just wish other docs were like him.
kathy d

Kathy..I very much appreciate your kind words..I feel better just reading your post..I have my info. and questions ready, I add to my list daily..but I started early enough so not be feel rushed..ducks in a row kinda gal!! I think no matter what Dr.S recommends for treatment..it has to be nice to have him on our side!!!!
Hugz to you and all of our friends here.. I'd be absolutely lost without you..!!

Kathy

It will be so interesting to hear what Dr. S. has to say - what are your options -we know that he has ketamine, what else will he currently recommend for you? I have heard that he is generally not in favor of the SCS (I think I read that on this board), you will have to let us know if that is true or not, of course all of us are different and there probably isn't a standard list of rules that he uses for all of his patients...

My appt with Dr. S. is at the very end of June. But by then I hope to have been successfully treated by Dr. Getson. Dr. S.'s consult fee is $500, and I have already remitted $400 for Getson, neither of which is reimbursable by insurance. Bummer.

Have a nice evening, Sandy

So nice to hear from you.... I am sorry that you will have to wait til June for your consult...I wish I could share my appt. with you!!!!

Hugz...k

Hey KS
Rememeber thatGod will be with you,,when you in the exam room waiting on him to come in,,ask The Lord to give you answers and relief from him and speak to you thru him,,,,,,and I also recommend what the others have told you,,,write down everthinng that you want to ask him,,,its a long wait and exspense,just to remember on the way home something else pops to mind that you wish that you would of asked him,,,,,,,Ive done that several times,,,,,,I wish you well,healing,relief,and Joy with peace