[babs74]

ok i keep hearing there is a difference between rsd and crps. Is there really a difference? first i was diagnosed with rsd, then it was crps type1. i hear that it doesnt spread thats why they call it regional syndrome.. i am really getting more confused by the drs i see.. can someone really answer these questions..if there is a difference what is it.. i am totally confused. i need to know which one i really do have..or if in fact they are one and the same and people are just stupid and dont understand.lol

[wswells]

Originally Posted by babs74

ok i keep hearing there is a difference between rsd and crps. Is there really a difference? first i was diagnosed with rsd, then it was crps type1. i hear that it doesnt spread thats why they call it regional syndrome.. i am really getting more confused by the drs i see.. can someone really answer these questions..if there is a difference what is it.. i am totally confused. i need to know which one i really do have..or if in fact they are one and the same and people are just stupid and dont understand.lol

Barbara, I too am as confused as you are. I was diagnosed in 1986 with RSD and the next thing I have crps with no apparent reason. You said you heard it was renamed because it doesn't spread thats bologna.Mine started in my lower right leg, and now I have it in every part of my body.I think they are like you said , they are one in the same. CONFUSED TOO! Wendy

[AintSoBad]

I highly Doubt, that this CRPS, will be the final name for this.

RSD I thought was better, and my doctor hasn't changed.

"Regional" does indeed, make it seem as if it won't spread, and all this proves to me?

Is that we're still test dummies (to the medical society at large), and that they've got a lot to learn yet. And, guess who's got to INFORM THEM?

Yep.
US!

Thanks for all keep on keepin' on!


Pete
asb

PS / BTW, I was speaking with an RSD friend a couple days ago, after her docs appt. and she was told that after 10 years, it goes internal for EVERYONE of us!
Can you imagine?

[dreambeliever128]

Most everyone I know still uses the RSD term. I thought regional meant that it could go to different parts of the body without going to all of them at once. If this is the case then if we have one spot on our body that doesn't have it, could we be considered full bodied?


Ada

[keep smilin]

Originally Posted by AintSoBad

I highly Doubt, that this CRPS, will be the final name for this.

RSD I thought was better, and my doctor hasn't changed.

"Regional" does indeed, make it seem as if it won't spread, and all this proves to me?

Is that we're still test dummies (to the medical society at large), and that they've got a lot to learn yet. And, guess who's got to INFORM THEM?

Yep.
US!

Thanks for all keep on keepin' on!


Pete
asb

PS / BTW, I was speaking with an RSD friend a couple days ago, after her docs appt. and she was told that after 10 years, it goes internal for EVERYONE of us!
Can you imagine?

Hello all..

I think I can help clear up some of the confusion..RSD and CRPS is one in the same..only CRPS is a more recent..updated name for the condition..Now CRPS has two divisions..I and II.. the divisions are separated by their origin..I being an injury to the nerve..which is better than II..II is an actually impingment or beak in the nerve itself... just recently on my Philadelhia trip to Dr. S..I asked him..do I have CRPS I or II?? He said both..but it does not matter now..cuz I have it...Regional pain Syndrome does referr to the area of origin where the pain began but YES in deedy!! This momma does spread..Possibly like Pete said..10 yrs. internally for us all but I tend to believe this illness travels where it wants, when it wants and as fast as it wants..Mine is now whole body and Internal and I have had it for only 3 years...

Bless you all!!

Kathy

[Wilbyfree]

Originally Posted by AintSoBad

I highly Doubt, that this CRPS, will be the final name for this.

RSD I thought was better, and my doctor hasn't changed.

"Regional" does indeed, make it seem as if it won't spread, and all this proves to me?

Is that we're still test dummies (to the medical society at large), and that they've got a lot to learn yet. And, guess who's got to INFORM THEM?

Yep.
US!

Thanks for all keep on keepin' on!


Pete
asb

PS / BTW, I was speaking with an RSD friend a couple days ago, after her docs appt. and she was told that after 10 years, it goes internal for EVERYONE of us!
Can you imagine?

Hi Pete, this scares the living daylight out of me. So my question is, does it actually have an effect on the internal organs or is the main symptom pain. My concern is I was diagnosed with Causalgia, Celiac Disease and Fibromyalgia all within about a six month period. The Causalgia is in my right foot and leg and rsd in left foot. I asked my doc if the rsd could spread, she said no. It has been six years of the initial diagosis, but I believe it started immediately after the fractures and surgeries in my feet in 2001. Thanks for any feedback.

Jeanie

[keep smilin]

Originally Posted by Wilbyfree

Hi Pete, this scares the living daylight out of me. So my question is, does it actually have an effect on the internal organs or is the main symptom pain. My concern is I was diagnosed with Causalgia, Celiac Disease and Fibromyalgia all within about a six month period. The Causalgia is in my right foot and leg and rsd in left foot. I asked my doc if the rsd could spread, she said no. It has been six years of the initial diagosis, but I believe it started immediately after the fractures and surgeries in my feet in 2001. Thanks for any feedback.

Jeanie

Jeanie~

My friend I can answer this one... yes..pain is the hall mark of the internal organ but it DOES have a negative effect on them as well..ie..stomach could stop digesting food..bladder start stop and lack of power to unrinate..on and on...GI constipation or diarrea.. I ma sorry this does sound aweful my freind..My Pa. trip did help me understand these questions and answers...

Let me know if I can help more...

love, kathy

[Wilbyfree]

Originally Posted by keep smilin

Jeanie~

My friend I can answer this one... yes..pain is the hall mark of the internal organ but it DOES have a negative effect on them as well..ie..stomach could stop digesting food..bladder start stop and lack of power to unrinate..on and on...GI constipation or diarrea.. I ma sorry this does sound aweful my freind..My Pa. trip did help me understand these questions and answers...

Let me know if I can help more...

love, kathy

Hi KS, thanks for your reply. It all just gets overwhelming and so confusing. Of course...my theory of denial doesn't help (what you don't know won't hurt you), if there is internal organ failure or damage and I could be preventing some of this I probably should get a bit more educated. As far as the pain, nothing would change there, I take very small doses of medication, but I am not willing to climb up the corporate ladder in the pharmacutical company. As long as I know I am not doing any damage or it is something I have no control over, I will just stay in denial mode. LOL Thanks...you are so kind. Wishing you and all a pain free day.

Jeanie

[babs74]

so chances are it really is traveling down my back without going down my right arm then.. my neuro wants to test me for fibro, she said that crps dont spread therefore the name regional. and it really made me mad when she said that.. I know my back is on fire, i can feel it burning. It hurts.. So she cant tell me it doesnt spread. I just needed clarification on which one i could possibly have.. So i appreciate all the responses.. Keep smiling any info you could pass along would be greatly appreciated since i have a deep misunderstanding of what is going on inside of my body and cant get any answers except on here at this moment.. Was trying to get into this dr that does ketamine and they sent my file to a dr that wants to take me off pain meds,(which i dont have) and put in scs. I really dont want that..

[finz]

Originally Posted by Wilbyfree

Hi Pete, this scares the living daylight out of me. So my question is, does it actually have an effect on the internal organs or is the main symptom pain. My concern is I was diagnosed with Causalgia, Celiac Disease and Fibromyalgia all within about a six month period. The Causalgia is in my right foot and leg and rsd in left foot. I asked my doc if the rsd could spread, she said no. It has been six years of the initial diagosis, but I believe it started immediately after the fractures and surgeries in my feet in 2001. Thanks for any feedback.

Jeanie

RSD's new name is CRPS type 1
Causalgia's new name is CRPS type 2

I consider it all to essentially be the same thing.....just causalgia (CRPS II) started with a definite nerve injury. RSD (CRPS I) can rear it's ugly head even after more minor injuries that 'shouldn't have' effected the nerves in the area. The spread of either would be in the RSD (CRPS I) form......and this beast definitely can spread !