Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 02-05-2010, 11:55 AM #1
geronimo geronimo is offline
Junior Member
 
Join Date: May 2009
Posts: 11
15 yr Member
geronimo geronimo is offline
Junior Member
 
Join Date: May 2009
Posts: 11
15 yr Member
Default Anyone have "hot" and "cold" rsd?

I was wondering if anyone out there had both hot and cold rsd. My foot and leg for the past year has mostly been differet shades of blue and purple and ice cold. Last night they were bright red and warmer than my other leg. Now this morning they are a reddish-purple(closer to my normal rsd color) but still warmer than my "good" leg. Ive seen people talk about warm or cold rsd but not both. Figure someone out there has had this happen
geronimo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
loretta (02-07-2010), Mslday (04-22-2010)

advertisement
Old 02-05-2010, 12:05 PM #2
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

Quote:
Originally Posted by geronimo View Post
I was wondering if anyone out there had both hot and cold rsd. My foot and leg for the past year has mostly been differet shades of blue and purple and ice cold. Last night they were bright red and warmer than my other leg. Now this morning they are a reddish-purple(closer to my normal rsd color) but still warmer than my "good" leg. Ive seen people talk about warm or cold rsd but not both. Figure someone out there has had this happen
Maybe it's a flare-up? Might be if you have more pain than usual.

If not...

RSD is divided into 3 stages, stage one is called the hot stage, stage two is where you can go from hot to cold and back again (the colors sort of have a marbled effect too), and stage 3 is the cold stage. Not everyone's RSD follows these outlines, though.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dreambeliever128 (04-18-2010), loretta (02-07-2010)
Old 02-05-2010, 12:10 PM #3
stressedout stressedout is offline
Member
 
Join Date: Apr 2009
Location: NJ
Posts: 143
15 yr Member
stressedout stressedout is offline
Member
 
Join Date: Apr 2009
Location: NJ
Posts: 143
15 yr Member
Default

Quote:
Originally Posted by geronimo View Post
I was wondering if anyone out there had both hot and cold rsd. My foot and leg for the past year has mostly been differet shades of blue and purple and ice cold. Last night they were bright red and warmer than my other leg. Now this morning they are a reddish-purple(closer to my normal rsd color) but still warmer than my "good" leg. Ive seen people talk about warm or cold rsd but not both. Figure someone out there has had this happen
I don't know as this is all so new to me. My hand and arm have always felt like they were on fire but the past wk I feel like a freezing bone pain,cold. My hand/arm go from red blotcy, purple to very white. It has spread up to my shoulder but the only swelling and discoloration I get is my hand and forearm.
stressedout is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
loretta (02-07-2010)
Old 02-05-2010, 01:04 PM #4
Momlovetobake Momlovetobake is offline
Junior Member
 
Join Date: Feb 2010
Posts: 68
10 yr Member
Momlovetobake Momlovetobake is offline
Junior Member
 
Join Date: Feb 2010
Posts: 68
10 yr Member
Default

I have rsd in my hands allthe wayup to my shoulders on both and i do feel the very to the point where i have to take off everything. Like now im very cold. I get the blocthes on my upper arm both sides...Usually that happens when im flaring really bad.
Momlovetobake is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
loretta (02-07-2010)
Old 02-05-2010, 03:57 PM #5
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
10 yr Member
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
10 yr Member
Heart

Quote:
Originally Posted by Momlovetobake View Post
I have rsd in my hands allthe wayup to my shoulders on both and i do feel the very to the point where i have to take off everything. Like now im very cold. I get the blocthes on my upper arm both sides...Usually that happens when im flaring really bad.
KS here..

I gotz to say..my dr. has said I have the most aggressive form of RSD he has ever treated and as far as temperature changes and differences..I am all over the map..hot one minute..cold the next.. I get so hot I turn into water but my feet could be cold..weird!! But ..we know RSD is such a treat..our thermostats are just screwed up... I can't aquaint a flare verses regular ole' RSD... all of the time.....

Hugz,Kathy
keep smilin is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
loretta (02-07-2010)
Old 02-06-2010, 09:26 AM #6
alaska49 alaska49 is offline
Member
 
Join Date: May 2009
Location: Pennsylvania
Posts: 221
15 yr Member
alaska49 alaska49 is offline
Member
 
Join Date: May 2009
Location: Pennsylvania
Posts: 221
15 yr Member
Default

I too have both hot and cold at the same time and man it really gets bother some. From my head to my back I am as hot as I can be to where if I take my temp it is 100-101 degrees while my hands and from my knees to my feet are so ice cold that they are turning blue. I was told my circulation is just getting that bad. The weird thing that I notice is if I get my hands and feet to warm up then my mid-body will cool down. Have both and cold and hot I hate, I would rather have one or the other then I could either put on blankets or take them off, while having both I have cool packs on my back and head and have my legs and arms wrapped in blankets.

Niki
alaska49 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
loretta (02-07-2010)
Old 02-06-2010, 10:49 AM #7
edever34 edever34 is offline
Member
 
Join Date: Mar 2009
Location: Louisville,Ky
Posts: 227
15 yr Member
edever34 edever34 is offline
Member
 
Join Date: Mar 2009
Location: Louisville,Ky
Posts: 227
15 yr Member
Default

I have often stated that how can my foot "burn' and "freeze" at the same time! So ,yes I am right there with you-Carol
edever34 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
loretta (02-07-2010)
Old 02-06-2010, 03:48 PM #8
RNcrps2 RNcrps2 is offline
Member
 
Join Date: Nov 2009
Posts: 180
10 yr Member
RNcrps2 RNcrps2 is offline
Member
 
Join Date: Nov 2009
Posts: 180
10 yr Member
Default

Hi. I am the same. I have generalized CRPS and my initial injured arm still turns purple and cold and my legs, feet and other arm usually turn red and hot, but the also turn cold and purple. It really thru me off when it first happened because i am so use to purple and cold. momof4
RNcrps2 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
loretta (02-07-2010)
Old 02-06-2010, 03:55 PM #9
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
10 yr Member
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
10 yr Member
Help SO>>>>>

Quote:
Originally Posted by RNcrps2 View Post
Hi. I am the same. I have generalized CRPS and my initial injured arm still turns purple and cold and my legs, feet and other arm usually turn red and hot, but the also turn cold and purple. It really thru me off when it first happened because i am so use to purple and cold. momof4

When is it called a "flare" as I can't tell the difference..Temp is all over constantly and never ends!! Help me... KS
keep smilin is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
loretta (02-07-2010)
Old 02-06-2010, 10:12 PM #10
akgh akgh is offline
New Member
 
Join Date: Feb 2010
Location: Maine
Posts: 5
10 yr Member
akgh akgh is offline
New Member
 
Join Date: Feb 2010
Location: Maine
Posts: 5
10 yr Member
Default

Hello. I am new to this forum. I have RSD and it is nice to be able to have someone to relate to this problem. My RSD is in the left arm. The worst part is that horrid burning pain, but the cold and hot are bothersome too. Sometimes when I have a flare up the arm itself will turn its lovely blotchy red and purple color but the back around my shoulder blade will feel like I am on a heat pad. In the beginning I thought I was going crazy until my workers comp doctor showed me the etiology and what is going on. It scares people to look at my arm, let alone touch it because the temp is so cold.
akgh is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
loretta (02-07-2010)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
A Definition Question- re meaning of "Full Body RSD" and "Internal RSD" ?? Cake Reflex Sympathetic Dystrophy (RSD and CRPS) 12 04-28-2013 10:47 AM
Actor Patrick Swayze, star of "Dirty Dancing" and "Ghost," FaithS The Stumble Inn 12 09-16-2009 04:42 PM
"The Bipolar Handbook" & "Horror Movie Hallucinations" Nathan1097 Bipolar Disorder 17 12-20-2007 06:41 PM
"Instant Karma" - the Voices of Apathy -"Coulter and Limbaugh" lou_lou Parkinson's Disease 0 11-02-2006 05:20 PM


All times are GMT -5. The time now is 02:35 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.