Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-11-2010, 11:02 PM #1
MysteryPainMom MysteryPainMom is offline
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Join Date: Jul 2010
Posts: 12
10 yr Member
MysteryPainMom MysteryPainMom is offline
Junior Member
 
Join Date: Jul 2010
Posts: 12
10 yr Member
Frown flare after physical therapy

My daughter started physical therapy about three weeks ago. Today when she was there, she did weight bearing exercise for the first time. Before that, she did leg lifts and other floor type exercises. Today was the first time she used machines. Tonight she is having a flare. Her pain level is much higher than it usually is even at night.

She still doesn't have a definite diagnosis, but I am convinced that she has RSD. She has all the symptoms, as I have discussed here before. The diagnosis that the doctor put on the prescription for PT was "sensory polyneuropathy." He has told me that it is just as likely that she could have RSD, but that the treatment is the same. Since it didn't say RSD, I am afraid that the PT may not be familiar, or may not be treating her in a way that is helpful for RSD. I know that some things can make matters worse, and I have been trying to not let that happen while we are still trying to get a definite answer about what she has.

Can anyone else tell me what their experience has been with physical therapy? Is it normal to have a flare after PT? Is this a sign that she should slow down?

Thanks!
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