Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-17-2010, 07:11 PM #1
rsdno rsdno is offline
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Default In Oregon Doctior told me 4 days ago is retiring and is gone

Hi Im rsdno I have had RSD Dxed about 4 decades ago when I was just a kid .I have had a Doctor or 2 tell me (then it should have burnt out by now)(if I could only give them a week in an RSDers shoes
Anyways I live in Springfield Oregon and I can't seem to find a Doctor I think i have enough meds until the 11th of October and by then situations will force what I do but I live at a Sheltercare for over 6 years and we are getting new Apartments if anyone can help me please I beg you ("seriously")
Is there still a RSD Chat here ?
Thank You and my best to all
rsdno
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AintSoBad (09-17-2010), fmichael (09-18-2010), loretta (09-17-2010), wswells (09-18-2010)

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Old 09-17-2010, 07:27 PM #2
AintSoBad AintSoBad is offline
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RSDNO,

Go to
rsdsa.org
You can type in your zip code, to help find a doctor.
I don't know what else you need, really. Explain more?

Your DR should give you enough meds to get you through and if he has a heart, should help you find an option!
He may be concerned about his malpractice insurance running out. (That's a HUGE concern for doctors!).

Other than that, look for University hospitals (websites), and neurology depts. Check out their specialties, and call, if you find one, or call the 'Chief of Neurology'. I don't know if your city/town is big enough to have one, you may need to find a 'bigger' city..

More info might be helpful..... for us to help you.

Be Well, OK?

Pete
asb
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rsdno (09-17-2010)
Old 09-17-2010, 07:30 PM #3
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For the flash chat, it helps to post some times that work best for you and be sure to say what time zone you are in.

Then others can see if the times work for them, or you can plan to set up a time for a group to join in.

You can make your own RSD room if you like once you are in the chat, but the main lobby room is usually not busy.
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"Thanks for this!" says:
rsdno (09-17-2010)
Old 09-17-2010, 07:39 PM #4
rsdno rsdno is offline
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Default Thank You for Answer ,I think I may be too poor

I have RSDSA on my E Mails after my signature and it is an excellent suggestion ,I have been a perfect patient nev er lost a pill tried every torture the Docs could think up so they wouldnt have to give me meds , I got SGBs (Stellate Ganglion Block )it froze my lunfs so I coukldnt breathe and had to be put on the respirator and the fish neurotoxins hole drilled in my head and a slough of others but it cant hurt to go back to rsdsa again and if anyone has any other ideas all are most welcome .
Thank You Aintsobad your name kinda makes me want to say yes but it is but justy getting advice someone reaching out helps ,I write Poetry and on occasion they are even published and I live somewhere where I have my own Studio and 5 days 9 AM to 5 PM there are 3 workers here unfortunately more for Psych problems (though it seems I would be crazy if I wasnt depressefd about being in pain
Thank You
rsdno
Go to
rsdsa.org
You can type in your zip code, to help find a doctor.
I don't know what else you need, really. Explain more?

Your DR should give you enough meds to get you through and if he has a heart, should help you find an option!
He may be concerned about his malpractice insurance running out. (That's a HUGE concern for doctors!).

Other than that, look for University hospitals (websites), and neurology depts. Check out their specialties, and call, if you find one, or call the 'Chief of Neurology'. I don't know if your city/town is big enough to have one, you may need to find a 'bigger' city..

More info might be helpful..... for us to help you.

Be Well, OK?

Pete
asb[/QUOTE]
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Old 09-17-2010, 07:43 PM #5
rsdno rsdno is offline
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Default Do You Live In Oregon

Well I copied what you said Thank You ,I am not real sure how to get to the other chap but will check this out ,I have a great Fibro Doctor but RSD is a dirty anagram it seems
Also Thank You for the Pics of Oregon I live here but cant get around very far
Gentle Hug
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Old 09-17-2010, 07:54 PM #6
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Default My E Mail if you are in Oregon ,have any advice

I figured it may be best to give my addy if anyone wants to get in touch with me my addy is rsdno@comcast.net or if I can ever help you ,I have my charts etc
Thank You rsdno
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Old 09-17-2010, 10:58 PM #7
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Quote:
Originally Posted by rsdno View Post
Hi Im rsdno I have had RSD Dxed about 4 decades ago when I was just a kid .I have had a Doctor or 2 tell me (then it should have burnt out by now)(if I could only give them a week in an RSDers shoes
Anyways I live in Springfield Oregon and I can't seem to find a Doctor I think i have enough meds until the 11th of October and by then situations will force what I do but I live at a Sheltercare for over 6 years and we are getting new Apartments if anyone can help me please I beg you ("seriously")
Is there still a RSD Chat here ?
Thank You and my best to all
rsdno
Hi RSDNO, I'm sorry you are losing your Dr. I was diagnosed in Eugene about 8 years ago-4 years after getting RSD following surgery. I now live in Arizona, but went back to Eugene and the hand surgeon for the sports injury group at Sacred Heart diagnosed me in 1 minute.
We have a personal friend that is a nuclear med tech at the Springfield Hospital. I'll ask him if he knows anyone at the hospital. and get back with you this weekend.
Hope things work out for you. Talk to you soon. one of your new friends, loretta
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Old 09-18-2010, 05:47 PM #8
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rsdno -

Another good source is the public directory of those pain management specicialists who have been certified by the American Board of Pain Medicine, the organization that supervises and accredits al post-residency fellowships in the U.S. and includes those practicing in Canada. In order to qualify, except for a few leading specialists who were grandfathered in at the geginning, a physician must complete a year-long clinical fellowship and then sit for and pass an 8-hour written exam. In other wards, these are serious people. And of course no warranty should be taken for bedside manner, express or implied.

Basicially, you open the search engine at http://www.association-office.com/ab...dir/Search.cfm and then enter as broad or narrow of geographic area as you're interested in. Then, under "Demographics," click on "Specialty of Origin." Opposite that, under "Description" there is a listing of specialties. You can do one specialty at at time, which will then generate a lists of names by cities; right click on any name to open it in a new tab.

Running the search engine for the State of Oregon, I got 2 lists of board certified pain specialists, 18 anesthesiologists and one neurologist (who's was in Eugene). I'm sure you will already be familiar with some of the names that come up; hopefully, there will be some new ones.

Finally, to repeat what I've posted elsewhere, I would avoid physiatrists, who may be great for lower back pain, but in my limited experience, were disasters in treating CRPS.

Hope this is useful.

Mike

PS Got your PM and will be happy to honor your "special request," but only because it comes from a friend.
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Old 09-19-2010, 05:38 AM #9
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Default Thank You for ypour help Im going to try Monday again

Wow I have already receieved several ideas and I'm trying each to the extent I can .I can't Tell you how your answers is helping me get through yjis really terrible thing right now ,please any more ideas ,or if you know of any decent MD,s here is my addy rsdno@comcast.net ,I wanted to put a poem out ion Thanks bevcause it is all I can give but figured there is probably a better place and time for such

Humbly yours
rsdno
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