Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-03-2010, 09:09 PM #1
Lisa in Ohio Lisa in Ohio is offline
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Hi Kathy, I was having the same thing that you describe. Went through all the testing and did find out that I had two small heart attacks this past summer. I had a really bad time with the heart meds, they really increased my pain level. Finally my PC doc put it all together. I was taking elavil since WC had decided they were no longer going to pay for my Cymbalta or any other anti-depressants, and my doc said that she had two other patients on elavil that had had the same heart problems and this was a very rare reaction to elavil. She gave me some samples of Cymbalta to replace the elavil and voila!! Most of the heart problems resolved. I do hope that your tests come back well for you and you are certainly in my heart and prayers. Lisa
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Old 10-05-2010, 01:34 PM #2
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Heart Dear Lisa..

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Originally Posted by Lisa in Ohio View Post
Hi Kathy, I was having the same thing that you describe. Went through all the testing and did find out that I had two small heart attacks this past summer. I had a really bad time with the heart meds, they really increased my pain level. Finally my PC doc put it all together. I was taking elavil since WC had decided they were no longer going to pay for my Cymbalta or any other anti-depressants, and my doc said that she had two other patients on elavil that had had the same heart problems and this was a very rare reaction to elavil. She gave me some samples of Cymbalta to replace the elavil and voila!! Most of the heart problems resolved. I do hope that your tests come back well for you and you are certainly in my heart and prayers. Lisa
I am so sorry for your news..2 heart attacks..That is aweful.. Were they able to detect them with the chemical stress test?? I sure hope you have a better handle on things now..Chest pain still?? AND RSD was not present in the chest wall?? My test is Friday..begin cutting out my heart meds and chocolate and caffene tomorrow.. its all goo.. ready to go..I studied!!

Love, Kathy
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SandyS (10-05-2010)
Old 10-05-2010, 05:33 PM #3
SandyS SandyS is offline
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Praying for you Kathy! (((((HUGS!)))))


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Originally Posted by keep smilin View Post
I am so sorry for your news..2 heart attacks..That is aweful.. Were they able to detect them with the chemical stress test?? I sure hope you have a better handle on things now..Chest pain still?? AND RSD was not present in the chest wall?? My test is Friday..begin cutting out my heart meds and chocolate and caffene tomorrow.. its all goo.. ready to go..I studied!!

Love, Kathy
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Old 10-05-2010, 06:43 PM #4
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Heart Sandy...

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Praying for you Kathy! (((((HUGS!)))))
Thank you so very much, Sandy.. I appreciate your sweet prayers..

hugz back!!
Kathy
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Old 10-05-2010, 06:54 PM #5
Lisa in Ohio Lisa in Ohio is offline
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praying for you Kathy. The no caffeine thing would be worse than about anything they could do to me!!! Be brave--chocolate is just around the corner again!!
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Old 10-05-2010, 09:37 PM #6
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Heart Thanks Lisa..

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praying for you Kathy. The no caffeine thing would be worse than about anything they could do to me!!! Be brave--chocolate is just around the corner again!!
Yea..by Friday I will wanting to bath in chocolate with an expresso on the side.. Thank you for your prayers!!

hugz, Kathy
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Old 10-06-2010, 05:27 AM #7
finz finz is offline
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Best wishes on the testing.

I think they'd have to put me out with general anethesia for me to quit caffeine ! I swear I'd main line diet coke if I could !

I remember each time I was pregnant......I wasn't happy to give up my wine, but no problem I could do it......absolutely no problem not smoking (although I went right back to it after both kids were born)......but beating my diet coke problem was beyond me. I did cut waaaayyyyyy down, to only one a day.

Kind of hard to say what we should root for on the cardiac testing......obviously it's no good to have a faulty ticker, but rsd to the chest wall does NOT SOUND GOOD either.

I hope they have an easy fix for whatever they find !
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Gee, this looks like a great place to sit and have a picnic with my yummy bone !
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Old 10-06-2010, 06:06 AM #8
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Heart Hey Finz..

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Best wishes on the testing.

I think they'd have to put me out with general anethesia for me to quit caffeine ! I swear I'd main line diet coke if I could !

I remember each time I was pregnant......I wasn't happy to give up my wine, but no problem I could do it......absolutely no problem not smoking (although I went right back to it after both kids were born)......but beating my diet coke problem was beyond me. I did cut waaaayyyyyy down, to only one a day.

Kind of hard to say what we should root for on the cardiac testing......obviously it's no good to have a faulty ticker, but rsd to the chest wall does NOT SOUND GOOD either.

I hope they have an easy fix for whatever they find !
it's a hoot..our caffeine means the world to us...I agree..I've thought this is a double edge sword.. I am 48 this is a crazy kinda thingie..but there is always room in my ailing heart for my wonderful family here!!!

Hugz, Kathy
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