Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-17-2010, 03:52 PM #11
keep smilin keep smilin is offline
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[QUOTE=wswells;705673]
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Originally Posted by keep smilin View Post
Just heard yesterday..I was approved for SSD... it took 3 months, and for New York State, I guess that is quick,,Real quick.. Iam thankful and appreciative for this step..Have not gotten "the" approval letter yet, they say in a week or two..but if any of you would like to share some of the benefits that go along with this benefit..I would sure appreciate that...
Kathy, that is the best news, especially with all you are going thru, maybe this will take some load off of you,or at least one less thing to worry about
take care of your self and celebrate
Your friend Wendy
I just love my family here..Thank you all for wonderfull supportive words and praise..I am still in shock and pleased and mostly not sure why yet...I know this opens up great things..ie..college and kids support..our daughter will be graduating from high school this year and our son is a freshman in high school..I have to receive my confirmation letter in a week or so they said..No, mine is not a workmans comp case..and yes, I had filed for the dependent children at the time of filing..I realize the first large payment placed in our acct. has to go back as that is an 'over-lape-payment' and then they will guide us on the rest..

This is another interesting part of this..I was actually approved back on 9/23/10 and was not advised about it..I was told that every once in awhile files are 'audited' not for our information but that our files were done correctly but the government and guess who's got pulled..Yup, mine..makes me feel good however as no doubt no mistakes made on my numbers in the process..it's all good..

I can't thank you all enough for sticking by me and sharing such happy feelings with me..Iam touched by each and everyone one of your notes and I reply to each of you with a huge thank you and a appreciative hug.. you're right and the timing of this was so nice with my sad heart for my Mom and all....it really lifts my heart..above the clouds!! You are all very special to me..

Much love, Kathy
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gabbycakes (10-17-2010), loretta (10-21-2010)

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Old 10-17-2010, 06:46 PM #12
Reddawn600 Reddawn600 is offline
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Default Eligible credits for SSI

Quote:
Originally Posted by keep smilin View Post
Just heard yesterday..I was approved for SSD... it took 3 months, and for New York State, I guess that is quick,,Real quick.. Iam thankful and appreciative for this step..Have not gotten "the" approval letter yet, they say in a week or two..but if any of you would like to share some of the benefits that go along with this benefit..I would sure appreciate that...

Hugz to each of you my RSD family..

Kathy
Does anyone know if the 20 credits ($20,000) in income over 10 years aplies in all cases? I was at home mom for 9 of those 10 years while supporting our family business from behind the scenes (sans paycheck of course thanks to an awful ex). Last I read, I cannot apply unless I decleare income for the next few years first. Lovely time to try to do it to,right? :P

I was in NJ till last year but am now in PA, not sure if that matters. Health insurance is private through Cobra for now. Any help would be much appreciated.

Thank you,
Dawn
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loretta (10-21-2010)
Old 10-18-2010, 05:08 AM #13
gabbycakes gabbycakes is offline
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[QUOTE=keep smilin;705796]
Quote:
Originally Posted by wswells View Post

I just love my family here..Thank you all for wonderfull supportive words and praise..I am still in shock and pleased and mostly not sure why yet...I know this opens up great things..ie..college and kids support..our daughter will be graduating from high school this year and our son is a freshman in high school..I have to receive my confirmation letter in a week or so they said..No, mine is not a workmans comp case..and yes, I had filed for the dependent children at the time of filing..I realize the first large payment placed in our acct. has to go back as that is an 'over-lape-payment' and then they will guide us on the rest..

This is another interesting part of this..I was actually approved back on 9/23/10 and was not advised about it..I was told that every once in awhile files are 'audited' not for our information but that our files were done correctly but the government and guess who's got pulled..Yup, mine..makes me feel good however as no doubt no mistakes made on my numbers in the process..it's all good..

I can't thank you all enough for sticking by me and sharing such happy feelings with me..Iam touched by each and everyone one of your notes and I reply to each of you with a huge thank you and a appreciative hug.. you're right and the timing of this was so nice with my sad heart for my Mom and all....it really lifts my heart..above the clouds!! You are all very special to me..

Much love, Kathy
Hi Kathy,

Just one question if you don't mind. Why do you have to give money back?

Gabbycakes
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Old 10-18-2010, 06:16 AM #14
keep smilin keep smilin is offline
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Heart Hi Gabbycakes..

[QUOTE=gabbycakes;705957]
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Originally Posted by keep smilin View Post

Hi Kathy,

Just one question if you don't mind. Why do you have to give money back?

Gabbycakes
I don't mind, ever..See since I filed..Allsup walked me thru the filing process.. My former empoyer hired them to do this with me..saved me lawyer help.. anyway..they told me from day one that the first chunk of change would not be mine as it is considered an overpayment to me..As I have already received my disability payment from my employers LTD insurance company for the month of October.... I have much to understand yet..

Does this help you??

Hugz, K
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Old 10-18-2010, 08:45 AM #15
Jimking Jimking is offline
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[QUOTE=keep smilin;705969]
Quote:
Originally Posted by gabbycakes View Post

I don't mind, ever..See since I filed..Allsup walked me thru the filing process.. My former empoyer hired them to do this with me..saved me lawyer help.. anyway..they told me from day one that the first chunk of change would not be mine as it is considered an overpayment to me..As I have already received my disability payment from my employers LTD insurance company for the month of October.... I have much to understand yet..

Does this help you??

Hugz, K
I'm confused now. LTD insurance is through your employer, not the fed. You contributed to your SSD through the years. Why should your payments to, thus eligibility to receive SSDI go to a private insurance company in which you and or employer payed or contributed to?
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Old 10-18-2010, 09:10 AM #16
Momlovetobake Momlovetobake is offline
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Hello all its been awhile since I been here. I want to say congrats to you keepsmilig isn't it a wonderful feeling? I was denied the first time but when i reapplied got it super fast. They sent th emoney before they sent the letters lol. I had to call to make sure i can use it. My girls are in the system but have not started payments for them yet. I had a figure that they gave me at first and it was cut way down. Thank you WC..I am thankful i have something. Just wish it did not come once a month lol.
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Old 10-19-2010, 08:28 AM #17
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Keep smilin, that is such wonderful news. I have been fighting to receive SSD since Jan 2008. I have been denied 3 times and now my case will be sent out of state for a final appeal. The ALJ (judge) ruled in my case that he thought RSD was subjective and he didn't believe my four doctor's (internist, pain management, therapist and neurologist) statements. He said I could find "something" to do. I waited three months after my hearing to receive the Unfavorable notice. I was so depressed I almost died. The stress of the decision made my blood pressure rise like crazy and it took three weeks to get it calmed down. I was not going to appeal but my attorney said he will handle it and I should try to forget about it.

I have RSD in both arms and I can not use my hands for any length of time. In fact, I am rarely on the computer due to pain and clawing of my right hand but I just had to respond because I am so pleased to see some of my fellow RSD sufferers are getting the help they need. It is so hard to show an outsider what pain and suffering feel like when you don't need an oxygen tank (the judge said this to me) or are blind.

I am sure receiving the assistance will take some stress off the situation, which always helps with pain. I have been in a huge flare since July and this ruling just pushed it up another notch. I am going to go soak in a warm Epsom salts bath after writing this so I can calm my arm down. I forget to do the extra little things like that, but I just read that on another thread.

Congrats again on your win, you so deserve it. Nobody knows that better than a fellow RSD sufferer.

Elyse
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Old 10-19-2010, 12:42 PM #18
Jimking Jimking is offline
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Quote:
Originally Posted by ElyseHart View Post
Keep smilin, that is such wonderful news. I have been fighting to receive SSD since Jan 2008. I have been denied 3 times and now my case will be sent out of state for a final appeal. The ALJ (judge) ruled in my case that he thought RSD was subjective and he didn't believe my four doctor's (internist, pain management, therapist and neurologist) statements. He said I could find "something" to do. I waited three months after my hearing to receive the Unfavorable notice. I was so depressed I almost died. The stress of the decision made my blood pressure rise like crazy and it took three weeks to get it calmed down. I was not going to appeal but my attorney said he will handle it and I should try to forget about it.

I have RSD in both arms and I can not use my hands for any length of time. In fact, I am rarely on the computer due to pain and clawing of my right hand but I just had to respond because I am so pleased to see some of my fellow RSD sufferers are getting the help they need. It is so hard to show an outsider what pain and suffering feel like when you don't need an oxygen tank (the judge said this to me) or are blind.

I am sure receiving the assistance will take some stress off the situation, which always helps with pain. I have been in a huge flare since July and this ruling just pushed it up another notch. I am going to go soak in a warm Epsom salts bath after writing this so I can calm my arm down. I forget to do the extra little things like that, but I just read that on another thread.

Congrats again on your win, you so deserve it. Nobody knows that better than a fellow RSD sufferer.

Elyse
ElyseHart, never give up on your benefits that you are entitle to. Make no mistake, if this judge's mother, daughter or wife had RSD this scumbag would be whistling a different tune. Never ever give up, you will receive your SS.
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Old 10-19-2010, 02:38 PM #19
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Heart Dear ElyseHart...

Quote:
Originally Posted by Jimking View Post
ElyseHart, never give up on your benefits that you are entitle to. Make no mistake, if this judge's mother, daughter or wife had RSD this scumbag would be whistling a different tune. Never ever give up, you will receive your SS.
My heartfelt gratitude for your wonderful words... I thank you so much.. and I want you to know how sorry Iam that you have to endure such aggrevation on receiving a favorable decision .... on which you deserve with a captial D! I agree with Jim, that if this was this judges wife or daughter or Mother..why things would be different.. then again this judge sounds a bit cold possibly it wouldn't even matter then to him... This is one more person I would like to offer him a sip out of my RSD cup..Drink up buddy boy!!!

But, I do want you to keep faith and keep going back at them... never giving up..do not let up on these people... you are not going away and I will pray for you in that you are awarded very, very soon....

Much love, Kathy

And thank you again for thinking of me..
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Old 10-20-2010, 10:41 AM #20
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Thanks for the kind words, I appreciate it. It was so good to read Keep Smilin's post about her success because it validates how truly disabling RSD can be and that we deserve consideration just like others who are disabled.

I struggle with this issue because some days can be good for me, then I have many bad days. When it is bad, I don't get out and people do not see me. They only see me when I am feeling well enough to go to the store or run an errand. They don't realize I can't keep it up for two hours, let alone eight. The disability part is so hard because (I can only speak for myself) it makes me feel so isolated from people and it is very lonely.

I think someone said it earlier - it is bittersweet in a way - it is a blessing to receive the financial assistance (we sure need it) but it is sad to become disabled in the prime of life. This has truly been an emotional rollercoaster for me.
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