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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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10-17-2010, 03:52 PM | #11 | ||
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[QUOTE=wswells;705673]
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This is another interesting part of this..I was actually approved back on 9/23/10 and was not advised about it..I was told that every once in awhile files are 'audited' not for our information but that our files were done correctly but the government and guess who's got pulled..Yup, mine..makes me feel good however as no doubt no mistakes made on my numbers in the process..it's all good.. I can't thank you all enough for sticking by me and sharing such happy feelings with me..Iam touched by each and everyone one of your notes and I reply to each of you with a huge thank you and a appreciative hug.. you're right and the timing of this was so nice with my sad heart for my Mom and all....it really lifts my heart..above the clouds!! You are all very special to me.. Much love, Kathy |
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"Thanks for this!" says: | gabbycakes (10-17-2010), loretta (10-21-2010) |
10-17-2010, 06:46 PM | #12 | ||
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I was in NJ till last year but am now in PA, not sure if that matters. Health insurance is private through Cobra for now. Any help would be much appreciated. Thank you, Dawn |
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"Thanks for this!" says: | loretta (10-21-2010) |
10-18-2010, 05:08 AM | #13 | ||
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[QUOTE=keep smilin;705796]
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Just one question if you don't mind. Why do you have to give money back? Gabbycakes |
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10-18-2010, 06:16 AM | #14 | ||
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[QUOTE=gabbycakes;705957]
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Does this help you?? Hugz, K |
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10-18-2010, 08:45 AM | #15 | ||
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[QUOTE=keep smilin;705969]
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10-18-2010, 09:10 AM | #16 | ||
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Hello all its been awhile since I been here. I want to say congrats to you keepsmilig isn't it a wonderful feeling? I was denied the first time but when i reapplied got it super fast. They sent th emoney before they sent the letters lol. I had to call to make sure i can use it. My girls are in the system but have not started payments for them yet. I had a figure that they gave me at first and it was cut way down. Thank you WC..I am thankful i have something. Just wish it did not come once a month lol.
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"Thanks for this!" says: | loretta (10-21-2010) |
10-19-2010, 08:28 AM | #17 | ||
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Keep smilin, that is such wonderful news. I have been fighting to receive SSD since Jan 2008. I have been denied 3 times and now my case will be sent out of state for a final appeal. The ALJ (judge) ruled in my case that he thought RSD was subjective and he didn't believe my four doctor's (internist, pain management, therapist and neurologist) statements. He said I could find "something" to do. I waited three months after my hearing to receive the Unfavorable notice. I was so depressed I almost died. The stress of the decision made my blood pressure rise like crazy and it took three weeks to get it calmed down. I was not going to appeal but my attorney said he will handle it and I should try to forget about it.
I have RSD in both arms and I can not use my hands for any length of time. In fact, I am rarely on the computer due to pain and clawing of my right hand but I just had to respond because I am so pleased to see some of my fellow RSD sufferers are getting the help they need. It is so hard to show an outsider what pain and suffering feel like when you don't need an oxygen tank (the judge said this to me) or are blind. I am sure receiving the assistance will take some stress off the situation, which always helps with pain. I have been in a huge flare since July and this ruling just pushed it up another notch. I am going to go soak in a warm Epsom salts bath after writing this so I can calm my arm down. I forget to do the extra little things like that, but I just read that on another thread. Congrats again on your win, you so deserve it. Nobody knows that better than a fellow RSD sufferer. Elyse |
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"Thanks for this!" says: | loretta (10-21-2010) |
10-19-2010, 12:42 PM | #18 | ||
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"Thanks for this!" says: | wswells (10-20-2010) |
10-19-2010, 02:38 PM | #19 | ||
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But, I do want you to keep faith and keep going back at them... never giving up..do not let up on these people... you are not going away and I will pray for you in that you are awarded very, very soon.... Much love, Kathy And thank you again for thinking of me.. |
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10-20-2010, 10:41 AM | #20 | ||
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Thanks for the kind words, I appreciate it. It was so good to read Keep Smilin's post about her success because it validates how truly disabling RSD can be and that we deserve consideration just like others who are disabled.
I struggle with this issue because some days can be good for me, then I have many bad days. When it is bad, I don't get out and people do not see me. They only see me when I am feeling well enough to go to the store or run an errand. They don't realize I can't keep it up for two hours, let alone eight. The disability part is so hard because (I can only speak for myself) it makes me feel so isolated from people and it is very lonely. I think someone said it earlier - it is bittersweet in a way - it is a blessing to receive the financial assistance (we sure need it) but it is sad to become disabled in the prime of life. This has truly been an emotional rollercoaster for me. |
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