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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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"Thanks for this!" says: | wswells (10-20-2010) |
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But, I do want you to keep faith and keep going back at them... never giving up..do not let up on these people... you are not going away and I will pray for you in that you are awarded very, very soon.... Much love, Kathy And thank you again for thinking of me.. |
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Junior Member
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Thanks for the kind words, I appreciate it. It was so good to read Keep Smilin's post about her success because it validates how truly disabling RSD can be and that we deserve consideration just like others who are disabled.
I struggle with this issue because some days can be good for me, then I have many bad days. When it is bad, I don't get out and people do not see me. They only see me when I am feeling well enough to go to the store or run an errand. They don't realize I can't keep it up for two hours, let alone eight. The disability part is so hard because (I can only speak for myself) it makes me feel so isolated from people and it is very lonely. I think someone said it earlier - it is bittersweet in a way - it is a blessing to receive the financial assistance (we sure need it) but it is sad to become disabled in the prime of life. This has truly been an emotional rollercoaster for me. |
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