Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-19-2010, 12:42 PM #1
Jimking Jimking is offline
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Originally Posted by ElyseHart View Post
Keep smilin, that is such wonderful news. I have been fighting to receive SSD since Jan 2008. I have been denied 3 times and now my case will be sent out of state for a final appeal. The ALJ (judge) ruled in my case that he thought RSD was subjective and he didn't believe my four doctor's (internist, pain management, therapist and neurologist) statements. He said I could find "something" to do. I waited three months after my hearing to receive the Unfavorable notice. I was so depressed I almost died. The stress of the decision made my blood pressure rise like crazy and it took three weeks to get it calmed down. I was not going to appeal but my attorney said he will handle it and I should try to forget about it.

I have RSD in both arms and I can not use my hands for any length of time. In fact, I am rarely on the computer due to pain and clawing of my right hand but I just had to respond because I am so pleased to see some of my fellow RSD sufferers are getting the help they need. It is so hard to show an outsider what pain and suffering feel like when you don't need an oxygen tank (the judge said this to me) or are blind.

I am sure receiving the assistance will take some stress off the situation, which always helps with pain. I have been in a huge flare since July and this ruling just pushed it up another notch. I am going to go soak in a warm Epsom salts bath after writing this so I can calm my arm down. I forget to do the extra little things like that, but I just read that on another thread.

Congrats again on your win, you so deserve it. Nobody knows that better than a fellow RSD sufferer.

Elyse
ElyseHart, never give up on your benefits that you are entitle to. Make no mistake, if this judge's mother, daughter or wife had RSD this scumbag would be whistling a different tune. Never ever give up, you will receive your SS.
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wswells (10-20-2010)
Old 10-19-2010, 02:38 PM #2
keep smilin keep smilin is offline
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keep smilin keep smilin is offline
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Heart Dear ElyseHart...

Quote:
Originally Posted by Jimking View Post
ElyseHart, never give up on your benefits that you are entitle to. Make no mistake, if this judge's mother, daughter or wife had RSD this scumbag would be whistling a different tune. Never ever give up, you will receive your SS.
My heartfelt gratitude for your wonderful words... I thank you so much.. and I want you to know how sorry Iam that you have to endure such aggrevation on receiving a favorable decision .... on which you deserve with a captial D! I agree with Jim, that if this was this judges wife or daughter or Mother..why things would be different.. then again this judge sounds a bit cold possibly it wouldn't even matter then to him... This is one more person I would like to offer him a sip out of my RSD cup..Drink up buddy boy!!!

But, I do want you to keep faith and keep going back at them... never giving up..do not let up on these people... you are not going away and I will pray for you in that you are awarded very, very soon....

Much love, Kathy

And thank you again for thinking of me..
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Old 10-20-2010, 10:41 AM #3
ElyseHart ElyseHart is offline
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Thanks for the kind words, I appreciate it. It was so good to read Keep Smilin's post about her success because it validates how truly disabling RSD can be and that we deserve consideration just like others who are disabled.

I struggle with this issue because some days can be good for me, then I have many bad days. When it is bad, I don't get out and people do not see me. They only see me when I am feeling well enough to go to the store or run an errand. They don't realize I can't keep it up for two hours, let alone eight. The disability part is so hard because (I can only speak for myself) it makes me feel so isolated from people and it is very lonely.

I think someone said it earlier - it is bittersweet in a way - it is a blessing to receive the financial assistance (we sure need it) but it is sad to become disabled in the prime of life. This has truly been an emotional rollercoaster for me.
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