Originally Posted by ElyseHart

Keep smilin, that is such wonderful news. I have been fighting to receive SSD since Jan 2008. I have been denied 3 times and now my case will be sent out of state for a final appeal. The ALJ (judge) ruled in my case that he thought RSD was subjective and he didn't believe my four doctor's (internist, pain management, therapist and neurologist) statements. He said I could find "something" to do. I waited three months after my hearing to receive the Unfavorable notice. I was so depressed I almost died. The stress of the decision made my blood pressure rise like crazy and it took three weeks to get it calmed down. I was not going to appeal but my attorney said he will handle it and I should try to forget about it.

I have RSD in both arms and I can not use my hands for any length of time. In fact, I am rarely on the computer due to pain and clawing of my right hand but I just had to respond because I am so pleased to see some of my fellow RSD sufferers are getting the help they need. It is so hard to show an outsider what pain and suffering feel like when you don't need an oxygen tank (the judge said this to me) or are blind.

I am sure receiving the assistance will take some stress off the situation, which always helps with pain. I have been in a huge flare since July and this ruling just pushed it up another notch. I am going to go soak in a warm Epsom salts bath after writing this so I can calm my arm down. I forget to do the extra little things like that, but I just read that on another thread.

Congrats again on your win, you so deserve it. Nobody knows that better than a fellow RSD sufferer.

Elyse

Originally Posted by Jimking

ElyseHart, never give up on your benefits that you are entitle to. Make no mistake, if this judge's mother, daughter or wife had RSD this scumbag would be whistling a different tune. Never ever give up, you will receive your SS.

Originally Posted by ElyseHart

The ALJ (judge) ruled in my case that he thought RSD was subjective and he didn't believe my four doctor's (internist, pain management, therapist and neurologist) statements. He said I could find "something" to do. Elyse

Originally Posted by ElyseHart

Keep smilin, that is such wonderful news. I have been fighting to receive SSD since Jan 2008. I have been denied 3 times and now my case will be sent out of state for a final appeal. The ALJ (judge) ruled in my case that he thought RSD was subjective and he didn't believe my four doctor's (internist, pain management, therapist and neurologist) statements. He said I could find "something" to do. I waited three months after my hearing to receive the Unfavorable notice. I was so depressed I almost died. The stress of the decision made my blood pressure rise like crazy and it took three weeks to get it calmed down. I was not going to appeal but my attorney said he will handle it and I should try to forget about it.

I have RSD in both arms and I can not use my hands for any length of time. In fact, I am rarely on the computer due to pain and clawing of my right hand but I just had to respond because I am so pleased to see some of my fellow RSD sufferers are getting the help they need. It is so hard to show an outsider what pain and suffering feel like when you don't need an oxygen tank (the judge said this to me) or are blind.

I am sure receiving the assistance will take some stress off the situation, which always helps with pain. I have been in a huge flare since July and this ruling just pushed it up another notch. I am going to go soak in a warm Epsom salts bath after writing this so I can calm my arm down. I forget to do the extra little things like that, but I just read that on another thread.

Congrats again on your win, you so deserve it. Nobody knows that better than a fellow RSD sufferer.

Elyse

Originally Posted by loretta

Hi Elyse, YOU deserve it too. I hope your next try with your attorney goes thru. I know being turned down did make you go into a flare. The McGill Pain Index lists RSD as 42 on a scale of 1-50 You can find this either under McGill Pain Index or RSDSA McGill Pain Index . Print that out and give your your attorney. It's so sad the legal and medical system are lacking in full understand of what we live thru day to day.
Please know we are all pulling for you and getting SSDI. I was turned down my first time, now going to try again. I've had it 15 years-full body or generalized and internal. pretty tough every morning when I wake up. Sometimes it last all day and sometimes I have a little time in the late afternoon or evening of some quality time.
Please let us know how it goes, one of your friends, loretta with big hugs