Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-02-2010, 01:43 PM #2
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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Hi Dee,

Welcome. How long have you been getting ketamine infusions? What dose do you typically receive? And how often? Just curious....how much have the infusions helped you? I also get ketamine, on an outpatient basis, I just started in the spring.

I live in southern New England, and the current change in weather is especially tough, even with the ketamine I can feel it. A move to a warmer, drier climate like Arizona sounds really awesome just about now. Unfortunately, we've got way too many committments to even consider such a thing for quite a few years. Enjoy the warmth...

XOXO Sandy


Quote:
Originally Posted by DeesRSD View Post
Good Morning everyone, hopefully its okay to post here and introduce myself: Im Dee and its been awhile since Ive been online talking to other RSD'ers ( is RSD'ers a word )

Ive had RSD for 5 yrs or so now, and I think I have tried just about everything out there for it...well at least that which I know is out there

I do get ketamine infusions, Ive had SCS trials, inplant inplanted and removed, meds, and the list goes on as most of you know...

I spent a couple years in a wheelchair and now I use a cane. I moved to AZ because the east coast weather was making it worse for me

I have a wicked sense of humor so plz bear with me I look forward to getting to know everyone and hopefully I can contribute a little knowledge ( very little, this RSD really fries my brain lol) seriously though I am more than happy to share what Ive learned over the past few years

Dee
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