Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 12-20-2010, 07:59 PM #4
kathy d kathy d is offline
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Join Date: Nov 2006
Posts: 327
15 yr Member
kathy d kathy d is offline
Member
 
Join Date: Nov 2006
Posts: 327
15 yr Member
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Hi Cindi 1965,
I just had to reply to your answer about dancing. I, like you, loved to dance and was always the first one up on the dance floor getting everyone else up to dance. I just said to someone the other day how at my oldest nephew's wedding two years ago, I had to sit in my wheelchair next to the dance floor in pain and watch everyone else dance and have a fun time!!!!!!!! And then look like I was enjoying myself. It was heck for me for sure. Then, when I went to leave someone grabbed my right hand and squeezed it and I saw stars for a few days. I used to wear heels too and now generic Crocs are my best friend!

Also, I had to laugh at you taking your cat naps and then boom you are asleep for hours. Up until Sept this year I never slept for years and would sleep 2-4 hours straight if I was lucky and then once a week I would sleep 6-7 hours and be thrilled. Since Sept I've been using Ambien and I've been sleeping so much better?? This stuff never worked before Sept (when I tried Ketamine and got off Fentanyl patch) and now thank God it is working well and I get sound sleep at night (about 6-8 hours) and then sometimes I take a pain pill and go back to sleep for another 4 hours. I am always thankful for any sleep I can get. I hope you get a good sleep tonight.
Take care,
kathy d.
P.S. In our minds we are still dancin'!!!!!!!!!!!!!!!!!!!!!
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CarlaDanDan (12-21-2010), cindi1965 (01-05-2011)
 


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