Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-02-2011, 07:52 AM #2
Swatgen27 Swatgen27 is offline
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Join Date: Oct 2009
Location: Illinois
Posts: 114
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Swatgen27 Swatgen27 is offline
Member
 
Join Date: Oct 2009
Location: Illinois
Posts: 114
15 yr Member
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I'm so sorry to hear that the appointment at the university did not give you the answers that you have been looking for. It took 2 years before I was diagnosed with CRPS and the waiting period was absolutely one of the hardest times of my life. It took the CRPS spreading throughout the whole lower body and but what finally made Dr's pay attention was at the 2 year mark my legs changed colors and became ice cold...absolutely boggles my mind as to how easy it was for alot of the Dr's to just blow me off in which in their minds I know they thought everything was in my head even though they left it unspoken, just the fact they blew me of was enough said...
Our intuition is usually spot on, and I too am having a hard time believing the cause of your new symptoms are stress related..
What tests have been run in the last 2 months? Is it possible that the CRPS is flared or has spread from the nerve blocks entering the spine? Has that been ruled out?
I would recommend trying to follow up with the pm dr that said you should be admitted ASAP. Sounded like that dr was on your side and was able to see that you are in need of medical care. I would definitly put that appointment ahead of your neurologist since he is at the end of his rope with answers. Is it possible that the nerve block has caused a small leak of spinal fluid? I have had a spinal tap procedure done and that caused a leak in spinal fluids which gave me the worse headache that I have ever had. Have the Dr's ruled that out?
Dont stop taking charge of your medical needs as now is the time that you have to fight your hardest. Please let me know if there is anything I can do to help.
Sarah
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