Originally Posted by RSD_Dan

I read your post before my appt just didn't have time to respond. I calmed myself down doing what I could exercise wise and breathing techniques, and took a 1mg klonopin.

The appointment was ok, although at the beginning I told him I would be going back to my original neurologist and (Dr. Argoff) who referred me in the first place. I also told him I was displeased with his attitude and treatment towards myself, a patient and his customer. He responded by saying he wanted to make sure I was not drug seeking, and then went on to say that he would like to still try and work with me in some manner.

He then went on to say that he would not prescribe me any narcotics or muscle relaxers as I had tested positive for THC (no **** sherlock, I had stated that I am an occasional user of cannabis from time to time on your little sheets and before you even gave me the **** test, so what was the point?). Not that I want to be on these things forever but they help a little for now. He did give me a script for pool physical therapy which I asked for and know I need.

At least I have an appointment with Dr. Argoff and he has enough time now for me to be a regular patient, and he also is a friend of my mothers and her boyfriend (who works in oncology at the same hospital, Albany Medical Center). This guy is also a lot more reasonable and friendly, and doesn't wear oakley reading glasses and $7,000 suits to work like that other @$$.

Thank you all for your help and support it has been a real life saver, I wish I could comment on all your posts and reciprocate a little more right now but I have to go, thanks again.

-Dan

Originally Posted by betsykk

well.........................
first of all, go to a teaching hospital. they are trying newer things. second of all, get admitted for pain control. that is the easiest way to get it done.
and really, do go to FB and join some groups. I see names on their all the time.

the bad thing is the list is not complete. the good thing is it is not complete because more and more doctors are using it!!!!

Originally Posted by RSD_Dan

I read your post before my appt just didn't have time to respond. I calmed myself down doing what I could exercise wise and breathing techniques, and took a 1mg klonopin.

The appointment was ok, although at the beginning I told him I would be going back to my original neurologist and (Dr. Argoff) who referred me in the first place. I also told him I was displeased with his attitude and treatment towards myself, a patient and his customer. He responded by saying he wanted to make sure I was not drug seeking, and then went on to say that he would like to still try and work with me in some manner.

He then went on to say that he would not prescribe me any narcotics or muscle relaxers as I had tested positive for THC (no **** sherlock, I had stated that I am an occasional user of cannabis from time to time on your little sheets and before you even gave me the **** test, so what was the point?). Not that I want to be on these things forever but they help a little for now. He did give me a script for pool physical therapy which I asked for and know I need.

At least I have an appointment with Dr. Argoff and he has enough time now for me to be a regular patient, and he also is a friend of my mothers and her boyfriend (who works in oncology at the same hospital, Albany Medical Center). This guy is also a lot more reasonable and friendly, and doesn't wear oakley reading glasses and $7,000 suits to work like that other @$$.

Thank you all for your help and support it has been a real life saver, I wish I could comment on all your posts and reciprocate a little more right now but I have to go, thanks again.

-Dan

Originally Posted by betsykk

I'm a huge advocate of ketamine infusions...the sooner the better.

Originally Posted by gabbycakes

Dan,

I went back and read you post and just 2 more things. Be carefull with the klonopin it's a benzodiazapan and can do more harm than good, trust me.
And 2 I wouldn't worry about cannabis on a urine sample. Most if not all test new patients just to make sure there not doing other drugs. Cannabis is being percribed in NJ and about 15 other states as treatment for RSD and other medical conditions.

Dan like I said I have been in PM for 7 years. I have seen some crazy things just while sitting in the waiting room and I can see why these doctors are paranoid. Some people just act crazy when after they tried to get over and lost. If someone walked into my office and behaved in such a manner I would just call the police they end.....

Gabbycakes

Originally Posted by RSD_Dan

I appreciate your concern but klonopin has been a godsend for my PTSD and anger issues. It's much better than the laundry list of SSRI's, SRNI's, Anti-psychotics, and amphetamines that I was prescribed when I was younger, those things made me suicidal and I won't even begin to go into the horror of that whole situation.

Plus I don't have to take it every day if I don't feel like I need to. I know there's concern for psychological (and physical) addiction. But you gotta understand you're talking to someone who's tried almost every drug you can try, has lost control, and regained control. I know what's best for my body and what's not. If it weren't for all this country's stupid laws I would be an excellent pharmacist, I'm a strong advocate for self-teaching especially when it comes to putting substances in your body, I never take a drug from a doctor before thoroughly researching it, same goes for when I was in my experimental stages.

You're a kind lady Gabby, your son is blessed to have you as a mother.

Originally Posted by luvinlucy

I am a29 yr old that was recently diagnosed wih CRPS afterhaving a foot surgery in October. The burning is horrible and nothig seems to help. IDK what else i can do I, my insurance ran out in jan so i am kind of limited to the extent of whats available. I am on several meds but no relieve. Can you nexlain to me what is ketamine treatments and where do you get them????" does anyone know if this ill ever go away??? I am miserable i now walk with a cane, somedays in my wheelchair due to the burning is so bad....help...

Originally Posted by Jenna Delaney

i have rsd in my left foot up to my knee i have had five blocks and they dont last for me maybe a day week or a month is all i got. i have tryed many meds i feel a anti anxiety med helps alot and i have others. i know for me anything soft is good sheets socks pants just a tip