Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-19-2011, 12:35 PM #1
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catra121 catra121 is offline
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Location: Illinois
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catra121 catra121 is offline
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
15 yr Member
Default Doctor runaround

So after trying to get ahold of my neurologist since Thursday last week I finally got a call back today from his assistant. They got my records from Northwestern and wanted to know if I was following up with a neuro psych. I was very confused because while the guy at Northwestern mentioned that he was going to put a recommendation like that in his report, he said that I was supposed to follow up with my local neurologist to go over the recommendations. The local neurologist doesn't want to see me. While I sort of understand that if it's not neurological he might not want to waste his time with me, what I could not understand was that they wouldn't even give me a referral or anything. They made it sound like the guy at Northwestern wants me to see a neuro psych there and any of them would be fine. Well...if that's what he wanted then why didn't he SAY that instead of saying, "Follow up with your neurologist in 2 weeks after they get my report."

I guess me point is that if I was supposed to schudule a follow up at Northwestern with a neuro psych then I would have done it on April 1st before leaving Northwestern instead of waiting 2 weeks (and I didn't actually wait two weeks, I called earler to find out if they got the report earlier and then was told Northwestern had no record of me ever going there), then not getting a call back until today just to be told to make an appointment with someone else at Northwestern. And my fear is that I call Northwestern and they say that I need a referral from my local neurologist and then I have to wait a week for that and then another 3 weeks for the appointment...it just seems INSANE!

So I don't know what's going on. I'm going to wait until I see my new primary care doc with the test results from the EMG and talk it over with her before I schedule any appointments. It should be this week so it's not like there will be any delay. I think I will call the neurologist's office back and ask for a copy of the report sent by Northwestern. That way I can bring that with me and see what she thinks of it all (and if I need the referral then maybe her office can do it). They called me with results from my blood test and I guess there were some abnormalities that she thinks could be caused by a virus or infection. I am SO glad I have this new doctor...everything there just seems to work the way it is supposed to and seems very professional. So far every other experience I have had with doctors since December (and the new problems that started in January) has been on ridiculous experience after the other.
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