Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-16-2012, 12:37 PM #1
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Default Looking for good FSM provider

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Originally Posted by Diana_in_CA View Post
I have fibromyalgia and most of my pain is in my neck and shoulders. FSM completely relieved the pain. The more treatments you do, the longer you get the pain relief. I also have the brainfog of fibro (and menopause) and it helped with that. I think if you are not getting results, it may be that the person giving the treatment is not well trained. I use a lady who actually trains others in how to use it.
Sounds like you got great results. I don't suppose I can impose on you to provide the name of your provider, i would ask them for a referral for someone in the Philly area. My daughter suffers from chronic neck pain with brain fog.

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Old 08-16-2012, 01:10 PM #2
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Originally Posted by polarman View Post
Sounds like you got great results. I don't suppose I can impose on you to provide the name of your provider, i would ask them for a referral for someone in the Philly area. My daughter suffers from chronic neck pain with brain fog.

Thanks
Hi polarman,
Does your dd have RSD or Fibromyalgia, or some other condition?

We also have a thoracic outlet syndrome forum (aka TOS) that has many posts for neck pain & spasms, it is something most of us deal with.
here-
http://neurotalk.psychcentral.com/forum24.html
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Old 08-16-2012, 01:49 PM #3
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My daughter was diagnosed with CRPS (RSD) when she was 9 (5 years ago). She had allodynia in her arm and foot and light sensitivity in one eye. After extensive inpatient physical therapy those symptoms disappeared but for the past 3 years she has had neck muscle spasms that cause her pain. She has tried anti muscle spasm medication, physical therapy, acupuncture, lidocaine injections but nothing has helped her. She also is often in a mental fog where she can't retain anything she reads and has a very difficult time with school work. We are looking into FSMT as a possible treatment.
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Old 08-16-2012, 02:00 PM #4
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Have they explored other possible causes for the neck spasms?
Or do they think the RSD spread there from the arm?

PT hasn't been able to help at all with the spasms? Have they tried ultrasound, IF stim or electric simulation of some type, low level laser, manual trigger point work, massage?

A few members benefited from chiropractic care (expert & gentle).
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Old 08-16-2012, 04:10 PM #5
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Originally Posted by Jo*mar View Post
Have they explored other possible causes for the neck spasms?
Or do they think the RSD spread there from the arm?

PT hasn't been able to help at all with the spasms? Have they tried ultrasound, IF stim or electric simulation of some type, low level laser, manual trigger point work, massage?

A few members benefited from chiropractic care (expert & gentle).
RSD docs think she has RSD - we are not convinced. She just went through 4 weeks of phys therapy for RSD in neck but no improvement.

Have not tried Ultrasound, Tens unit does not help. We did do light therapy early on with her RSD and she had no improvement. The acupuncturist was working the trigger points. Was encouraged by Diana_in_CA's post and hoping will speak to her therapist about a referral. Hadn't heard of Brain Fog previously.
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