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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Co-Administrator
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Does your dd have RSD or Fibromyalgia, or some other condition? We also have a thoracic outlet syndrome forum (aka TOS) that has many posts for neck pain & spasms, it is something most of us deal with. here- http://neurotalk.psychcentral.com/forum24.html
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My daughter was diagnosed with CRPS (RSD) when she was 9 (5 years ago). She had allodynia in her arm and foot and light sensitivity in one eye. After extensive inpatient physical therapy those symptoms disappeared but for the past 3 years she has had neck muscle spasms that cause her pain. She has tried anti muscle spasm medication, physical therapy, acupuncture, lidocaine injections but nothing has helped her. She also is often in a mental fog where she can't retain anything she reads and has a very difficult time with school work. We are looking into FSMT as a possible treatment.
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Co-Administrator
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Have they explored other possible causes for the neck spasms?
Or do they think the RSD spread there from the arm? PT hasn't been able to help at all with the spasms? Have they tried ultrasound, IF stim or electric simulation of some type, low level laser, manual trigger point work, massage? A few members benefited from chiropractic care (expert & gentle).
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Have not tried Ultrasound, Tens unit does not help. We did do light therapy early on with her RSD and she had no improvement. The acupuncturist was working the trigger points. Was encouraged by Diana_in_CA's post and hoping will speak to her therapist about a referral. Hadn't heard of Brain Fog previously. |
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