Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-13-2011, 01:52 PM #7
darcy2410 darcy2410 is offline
Junior Member
 
Join Date: Sep 2011
Location: New Jersey
Posts: 7
10 yr Member
darcy2410 darcy2410 is offline
Junior Member
 
Join Date: Sep 2011
Location: New Jersey
Posts: 7
10 yr Member
Unhappy Thanks Anita

Quote:
Originally Posted by alt1268 View Post
Darcy,

Welcome. I am fairly new to this site and have had the monster for coming up on 2 years. I also have Crps 2. I feel and had over 4 fractures in my right ankle. I will try and answer your question to the best of my ability.
Stiffness is part of the disease for some. Everyone has a little different story so your body's reaction vs. mine or someone else's maybe different.

There are times that I feel like there are bumble bees attacking my foot, there are times (most) that I have burning on top, while the bottom, and recently the calf is ice cold. When the coldness started it felt like running ice water down my leg. But when I felt it, it was warm.

Sleep is hard to come by and I find I take naps now on occassion. As well as I can't a blanket on my foot. Feels like a cement block.

My feeling behind you working and housework, is strictly that, my feeling. DO AS MUCH AS YOU ARE ABLE. Just make sure you have taken your medication long enough so that you know your reaction.

OH yeah you will also be a walking barometer. You will know when the rain is coming, the snow, a drop of 10 degrees. I am not sure if that is a 2 thing or we all get it.

Have you had any blocks done?
Anita
Thanks for taking the time Anita. I haven't had anything done except taking the meds I listed. My podiatrist is fighting to get me help...he sent me to pt in the beginning but it did nothing. My neurologist does not seem to interested in my well being so I am in search of more help. Like I said, my podiatrist is fighting for me, even making phone calls on my behalf. Unfortunately, I have not found a doctor willing to take on my case..."your case is too in depth, you need extensive help and I cannot afford to add you to my patient list at this time with my current patient load". This is all new for me and I have alot to learn because it looks like I'm in for a hell of a fight.

Darcy
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