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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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03-21-2007, 07:10 PM | #1 | |||
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Magnate
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Last week I started dealing with a runny nose, CF, and the top of my head felt funny down to my eyes. I know I have allergies. Have for several years. I went in yesterday and got a flu shot and forgot to ask my nurse how long it takes allergy shots to work and and how long the work. Do any of you have any ideal?
I see a difference in my head and eyes but I still have the runny nose and the CF. I haven't dealt with the CFS this bad for quite awhile. I am doing nothing different with meds and I do take my walks even though I feel this way but in the afternoon and night I am so tired I can't think straight. I know I might be overdoing it with all I have going on around here but this started before I started overdoing it. Thanks, Ada |
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03-23-2007, 08:39 PM | #2 | ||
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Hi Ada,
Yes I have a few allergies - it's odd, never had any till I passed 30. Eczema in my ears, permanent hay fever when HK gets too polluted - it's a problem here in Hong Kong, not from us, but from the industrial plants over the border in Mainland China. I can get a reaction to cats if there are too many or I'm with them for too long (shame, I love cats!), also to the metal used in cheap jewellery - that one's instantaneous, my skin comes right up in red welts. So...nothing too terrible. I think I mentioned in a previous post that last year I went on 2 courses of antibiotics for eradication of the bacteria causing stomach ulcer. I never take them if I can help it. But to my surprise, my permanent hay fever is signicantly better since taking them....go figure... I know you're embarking on Herculean tasks of moving and sorting, and you've got surgery coming up - along with all the terrible stresses in recent months...I really wish you all the very best, and really admire your strength and perseverance. Good for you, Ada, you're doing brilliantly. BTW, one thing that helped with the hay fever was Nasonex, a sniffer spray. the active ingredient is mometasone furoate. Perhaps that might give you some relief, it certainly helped with the blocked nose, all the best, Ada |
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03-23-2007, 08:57 PM | #3 | ||
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Dear Ada,
I have had allergies my whole life. I also take Nasonex which helps some. I wonder it my lastest eye problems are due to allergies. Well here is a asthma trial. http://clinicaltrials.gov/show/NCT00266851 Hugs, Roz |
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03-24-2007, 02:35 PM | #4 | |||
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Magnate
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Thanks for the input.
I got a flu shot Monday and it hasn't done anything for my runny nose and cronic fatigue. It's raining here today. I got quite a bit packed but we can't take it over due to the rain. As much snow as we have had this winter I am wondering if we are going to have flooding around here. I am allergic to cats also, Artist. I itch all over from them. I had one when I was small and don't remember being allergic though. Every once in awhile the boys will try and sneak one in and I start itching. Dustin did about a year ago and hid it and I started itching. He noticed and took it out. My allergies just came on since I have moved to the country so I am hoping I might see a difference when I get in town. Thanks for the help, I will try the Nasonex, I sure get tired of my runny nose. Ada |
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03-25-2007, 02:04 PM | #5 | ||
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Member
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Ada, I am assuming you mean seasonal allergies and not food allergies?
I have some food allergies: several kinds of nuts (they make my mouth and throat itch and give me headaches), preservatives sometimes make my face itchy/ red... Seasonal allergies~ I have never really had a problem with them except last year... the Spring leading up to this RSD attack- all of a sudden whenever I would go outside my legs, arms/ hands would break out terribly, itch, burn and I'd have rashes all over. My Dr chalked it up to a really high pollen/ dry spring, and gave me allergy meds.. Well, I think to this day that that was all related to the RSD. I think my body just went nuts over-reacting to everything (RSD is overactive nerves, and the body in a fight/flight response mode)... I think it's all related but who knows! In a way it makes me think that RSD really is immune AND neurological, as the RSDSA states. I hope you are feeling well. You really amaze me, that you take walks in with the hip/ pelvic pain. You are an inspiration! You mentioned that you think your RSD is going in remission? That's great! What makes you think that- have you lost symptoms, etc? Because I had a good experience the other day that really gave me hope- I didn't have much- no pain in my lower arms/ hands and my symptoms are a lot less in my hands/ arms... MAYBE!! Now to deal with the shoulders/ back/ legs/ feet!! Sending warm hugs! |
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03-25-2007, 03:19 PM | #6 | |||
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Magnate
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I do mean seasonal allergies. As I stated I got a allergy shot last week but am still dealing with the runny nose. I didn't have allergies until I got RSD. Now I have the seasonal allergies and am allergic to a lot of meds and foods. I too think it's from the RSD.
The reason I have my RSD in remission has been the care I have had. As soon as I was diagnosed with it my PCP went to work on it. He started giving me the meds I needed, getting the blocks for me, put me in PT, gave me triggerpoint injections which I swear by. I have a PCP that has no meaning of the word quit. He was determined to get me through this so I saw him weekly and still do to deal with the councelling, pain and whatever else I have to deal with. Now comes the VNS for depression. My belief is that RSD is not something that the Drs. can just give you a few meds and see you just when they are needed refilled and be done with it. I believe that is why we are not seeing any kind of good remission rate with RSD. We realize you don't get well from it, and I don't know many that have it and can work, but again there are some of them out there. I believe that it is a syndrome that takes so much care that the Drs. don't want to deal with it due to the fact that insurance companies donot want to keep paying for the length of time it takes to get better from it. I don't see many people that get the triggerpoint injections at all. The few that do only get a few and then feel like they don't work because they can't get enough to calm down the pain. Dr. Hooshmand talks about them in his book often and they are one of the most important things that has taken my pain away. I swear by the blocks to and again you see people only getting one or two even it they show signs of working. It takes a series of them to work. I have mine calmed down in the arms, hands, legs, back, chest, neck, and seeing some improvement now in the pelvic area from triggerpoint injections. There are also Physcial Therapist that do pelvic pain therapy. I have my foot calmed down due to shots and my hands and fingers. This surgery scares me because of the fact that it may go into my head area but my PCP says he's ready and the surgeon says he will do everything he can to keep it from happening short of a block. They can't do one in that area. I think about the wonderful people we have here on this forum and the fact that they cannot get the real good help they need to get better. If I had one wish I would wish for them to get the kind of care I have been blessed with. It's sad to see so many good people in so much pain and suffering. I have to go I have to make one more trip today to my other place. Thanks for the help. Ada Last edited by dreambeliever128; 03-25-2007 at 06:28 PM. |
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