Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-26-2012, 11:23 PM #1
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I have gained a lot of weight also, but I know i is because I have lost motivation and the pain keeps me inactive. I am praying hard for my will power to return. I get sad when I think of the 30lbs I have gained because prior to my fall I had a trainer and I was working out 4 days a week. RSD as changed my life and I know many others.
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Old 01-26-2012, 11:50 PM #2
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I have to be honest though...I'm a little frustrated by the weight gain but not super focused on losing it. I try to think positively about it and focus on just being healthy more than anything. I get very annoyed with some of the doctors I have seen (not my current one but many that I saw in the last year) when I explain to them how much weight I have gained and they just ignore me. I have explained to my current doctor that my concerns have less to do with the weight itself and more with the inflammation and puffiness and the possibility that these things are making the pain worse and/or are a symptom of something else being wrong.

No one really likes to gain weight...but try to remember that it's more important that you be healthy than to be at any specific weight. Like I said...changing my diet to the 4 F's diet has really made me FEEL better even if I haven't seen a big change in overall weight. I try not to focus on all the things that have changed in my life because of the RSD and instead try to focus on the things I can do to make my life better in this moment. Whenever I think about all the things that have changed in my life it's easy to start feeling depressed and to lose that motivation...so I try to focus on the things I can do in the present to try to improve the future.
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Old 01-27-2012, 06:25 AM #3
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Mine weight gain started with the Lyrica. I had gained some when I first was injuried but lost and was fine. The lyrica came into my life I gain 70lbs. We stopped after 2 months because of the weight gain and it just kept coming. Last spring and summer I lost 37lbs of it my just eating correctly and going to the gym consistantly. And working out helps my pain, that's the one time I have almost no pain. Weird right! I have asked my doctor about it in the past and he did give some explanation about the endorphine release and the continuous moving that helps the nerves. I have crps II with ulnar nerve damage. I have looked for a study on it but could only find the peds. programs the consist of heavy pt,desensativation, etc. Sorry, got off track. I have gained about 5-10 lbs back but as soon as I calm my life down I will start again. I feel so uncomfortable at times with the extra weight and my clothers don't fit right, ugh..

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Old 01-27-2012, 08:30 AM #4
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Default Same here....

I had lost so much weight on Weight Watchers prior to this RSD spread in 2009, now I have pretty much regained the majority of it since I can't get out there and do what I was doing before, like working out and even walking around the block! It is so frustrating!

I now have a gluten intolerance and one dr told me I was borderline gastroparesis. A lot of the gluten free foods are fattening and the best options, my system can't handle... I have difficulty digesting fruits and veggies...the things that I should be eating!! I have several food allergies too. You would think I would be skinny as a rail, but nope I am far from it...big and swollen!! UGH!!! The meds don't help either....

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Old 01-27-2012, 01:09 PM #5
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My doctor doesn't act to concerned either but now my husband says that I snore which is an indicator of sleep apnea which can be caused by weight gain. So I am defenitly going to bring this up again at my February apt. I am on Neurontin which from what I have read is notarious for weight gain and I believe so is Lyrica. I will try eating better and drinking water. I think Catra maybe on to something by eating smaller meals so my hunger doesn't get out of control.
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Old 01-27-2012, 02:46 PM #6
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Originally Posted by alt1268 View Post
My doctor doesn't act to concerned either but now my husband says that I snore which is an indicator of sleep apnea which can be caused by weight gain. So I am defenitly going to bring this up again at my February apt. I am on Neurontin which from what I have read is notarious for weight gain and I believe so is Lyrica. I will try eating better and drinking water. I think Catra maybe on to something by eating smaller meals so my hunger doesn't get out of control.
I've always been a fan of eating throughout the day but was never much of a "snacker" per se. It would be pretty normal for me to eat every couple of hours but instead of eating chips or cookies or something like that I would make myself a sandwich or pop in a small tv dinner or something. I have a very fast metabolism prior to the RSD...could eat anything and just never gain the weight...and I think part of that was because of the way I ate throughout the day instead of 3 larger meals. I've seen things on tv and read some stuff about this...something about how eating throughout the day keeps your system from going in rest/fat storing mode or something. Even just substituting different foods for your snacks (like a sandwhich or a yogurt or whatever) may be helpful. I still allow myself a cheat every now and again (like once a week)...cutting certain things out of my diet completely has just not been possible...but that one little cheat every now and then doesn't seem like it messes up my diet or anything.

Good luck.
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Old 01-27-2012, 05:30 PM #7
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I use to be this way until I started having hot flashes around 35. Then the weight pilled on over the next couple years I gained 20 lbs. Then I got rsd and gained another 20-25 lbs. I am going to see about getting put on estrigen to see if this will help. I will try and eat healthy snacks in between meals also. But I tell you I'm craving chocolate just sitting here writing.
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I've always been a fan of eating throughout the day but was never much of a "snacker" per se. It would be pretty normal for me to eat every couple of hours but instead of eating chips or cookies or something like that I would make myself a sandwich or pop in a small tv dinner or something. I have a very fast metabolism prior to the RSD...could eat anything and just never gain the weight...and I think part of that was because of the way I ate throughout the day instead of 3 larger meals. I've seen things on tv and read some stuff about this...something about how eating throughout the day keeps your system from going in rest/fat storing mode or something. Even just substituting different foods for your snacks (like a sandwhich or a yogurt or whatever) may be helpful. I still allow myself a cheat every now and again (like once a week)...cutting certain things out of my diet completely has just not been possible...but that one little cheat every now and then doesn't seem like it messes up my diet or anything.

Good luck.
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Old 01-27-2012, 01:10 PM #8
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Quote:
Originally Posted by Nanc View Post
I had lost so much weight on Weight Watchers prior to this RSD spread in 2009, now I have pretty much regained the majority of it since I can't get out there and do what I was doing before, like working out and even walking around the block! It is so frustrating!

I now have a gluten intolerance and one dr told me I was borderline gastroparesis. A lot of the gluten free foods are fattening and the best options, my system can't handle... I have difficulty digesting fruits and veggies...the things that I should be eating!! I have several food allergies too. You would think I would be skinny as a rail, but nope I am far from it...big and swollen!! UGH!!! The meds don't help either....

Nanc
How frustrating to work so hard to get the weight off only to be rewarded with a CRPS spread. Gastroparesis with CRPS is something to be taken real seriously. I cannot tell you how miserable I was with gastro symptoms. For me, the symptoms were so bad that i lost 40 pounds and was so severely underweight that I looked like photos of concentration camp survivors. tDCS knock it right out and none of the symptoms have returned. One time I could not remember what it was like to have no gastro problems. Now that those problems are gone, however, I remember them as though they never left.

Hope this helps!
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Old 01-27-2012, 02:38 PM #9
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Quote:
Originally Posted by Nanc View Post
I had lost so much weight on Weight Watchers prior to this RSD spread in 2009, now I have pretty much regained the majority of it since I can't get out there and do what I was doing before, like working out and even walking around the block! It is so frustrating!

I now have a gluten intolerance and one dr told me I was borderline gastroparesis. A lot of the gluten free foods are fattening and the best options, my system can't handle... I have difficulty digesting fruits and veggies...the things that I should be eating!! I have several food allergies too. You would think I would be skinny as a rail, but nope I am far from it...big and swollen!! UGH!!! The meds don't help either....

Nanc
Ugh...that really stinks! I'm so sorry that you have to deal with things like that. My mom has rheumatoid arthritis and suffers from weight problems but she is allergic to fresh fruits, fresh veggies, most kinds of nuts, and shellfish. It would be so hard to try to eat well if you cannot eat the foods that are good for you. I'm so sorry that you have to deal with that. And then to have worked so hard to lose the weigth before only to end up with CRPS...life can play some cruel tricks on us...
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