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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#31 | |||
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Junior Member
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Mentally I think I am good, I love your attitude and exuberance about returning to work (hoping it is infectious!!). Unfortunately my focus is getting through each day, with my goals being finding helpful doctors and therapists. Maybe I should add finding a girlfriend to that lol once the weather warms up?? With 2 disabilities in my right arm, when I was allowed to search for work no company wanted me because of the potential liability. Ahh well, maybe in 2013 ![]() Oh, and tell us when you are running that marathon!!! |
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#32 | |||
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Senior Member
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But next on my list after I get back to work and figure out how to balance my life with the limitations of the RSD: Disney World! Lol! That's probably still another year off yet but with a new goal in mind it will keep me focused on continuing my therapy (which I do all on my own now and not as part of a program or anything) and pursuing better treatment options like (hopefully) tDCS. Honestly...setting goals for myself and then working with a doctor to achieve those specific goals has been the best way for me to go instead of just letting myself be at the mercy of the doctors. I ended up with a very compassionate doctor who has just been a godsend. I really hope you get on the right track this year so that you can get back to living your life instead of just surviving and making it through. Finding the right doctor who can get you there is such a huge piece of the puzzle. If you can get that nailed down I am sure that you will get your life back. It'll never be the same of course, but once you have lost so much just getting even a small piece of that back feels like such a big win. At least...I know it feels that way for me. You've got the right attitude so I have no doubt that you'll be able to accomplish great things once you find that doctor who wants to and is able to help you. |
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#33 | |||
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Junior Member
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Disney World?? You are ambitious! Love it! All that bouncing, noise, etc. will be a real pure test and I really hope it is pure enjoyment for you. I am hoping just to visit another state I have never been to for a week or so and be around nice people so i can expand our friendship. By the way, I use facebook for chat if anyone wants, message me and will give info ![]() |
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#34 | |||
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Senior Member
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Disney World is my happy place...I've been there over 20 times in my life (and I'm only 28) and never had a bad time. My parents even renewed their wedding vows in Disney in 2007. I was able to go in September 2010...a year after I got RSD in my ankle when the pain was being decently managed by meds. it was a different sort of trip...really had to take it easy...but had a fantastic time. Now with RSD in my upper body too...I am very nervous. But Disney is very good in terms of access for those with disabilities so I am hoping that I can make it work. But that's a long way off...gotta get back to work first and then focus on the next goal.
I hope you can find some way to take a vacation...hopefully some place warm. I love to travel but I know I will be very limited the way things are at the moment. My boyfriend's family has a house on a lake that we go to sometimes and it is honestly just nice to be somewhere different...even if I can't go out and do much. Just sitting out on the deck and looking out at the lake was nice. But getting there is awful these days...that first day after we get there I am a mess. It's good if we can stay for a week though because then I have time to recover, enjoy myself, and then go through the painful ride back home. But it's worth it just to get away for a few days. |
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#35 | |||
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Junior Member
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Guess we need to start our own weight loss program for us with RSD and all and include family and friends :P |
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