Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-09-2007, 08:04 AM #7
tayla4me tayla4me is offline
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Join Date: Feb 2007
Posts: 486
15 yr Member
tayla4me tayla4me is offline
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Join Date: Feb 2007
Posts: 486
15 yr Member
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Quote:
Originally Posted by Sydney View Post
Just wanted to say that I also agree with Alan and Artist. Be very cautious about irritating the nerves. You may make things worse - unfortunately. I know others may have been helped and that is wonderful. However. from experience I can tell you that all invasive procedures have made me worse. They just seem to set off the nervous system and cause more pain in new areas. I had acupuncture which was a disaster. On baby needle in my head caused an immediate severe migrane. Thank goodness for 6 weeks of Trigger point injections. It went away. Then a simple IV in my hand for altrenative medicine treatment of glutithion caused RSD in my hand and arm. Even dental extractions necessitate me having to get TPI in my gums for weeks as the extraction irritates the nerves and causes severe pain.
I could go on and on with ex. but you get the idea.
Of course, that is only me and my experience. Others I am sure have success and I am so happy for them.
Just wanted to caution you as we all are different and think back to any other procedures which caused further pain.
Wishing you the best . I know it is a hard decision as I am now deciding if I want to do the ketamine infuson coma. I am on the waiting list. However, I am really apprehensive about the invasive nature of the treatment. Not sure if I will really go through with it when the time comes.
Best wishes,
Sydney


Hi Sydney, Just wondering where you live if you are on the waiting list for coma inducing Ketamine. I was led to believe that it is not allowed in UK, USA or Australia and at the moment it is only done in Germany. Have things changed? I'd love to know if you wouldn't mind.
Thanks very much
Tayla
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