Could you please supply me with the name of the physician who treats pelvic rsd? I have been suffering for five years I was just diagnosis full body but my private parts are twisted atrophied painful out of place.....etc I can not use the bathroom feel it the pain is so unbearable I can not stand sit walk...etc
Please a contact I did try reaching barby ingle..... Also if you have dr harbut contact info I've been trying to track him done also
Full body effecting organs just diagnosed after five years.... Burning atrophied wasting away
Thank u sooo much<3

AZ - Dr. Siwek , Dr. Turley will only see you for booster infusion,Dr. Lynch

[QUOTE=alt1268;892014]AZ - Dr. Siwek , Dr. Turley will only see you for booster

Are these the physicians who treat pelvic rsd?

Dr Hibner
500 W Thomas Rd Suite 600
Phoenix, AZ 85013
(602) 406-6017 (Office)

He is an expert on pelvic RSD!

Can dr Donna Thomas also help
I have brown spots all over labia which is so small
Red closed vagina
Cracked raw labia on outside so painful
I am in agony
My oncologist rubbed the spots saying just dry skin
Now next day I'm torn there and shinny red skin
Pain! No feeling of urination burns! I cam not deficate correctly then a mess because all is swollen

I'm so sorry but can Syracuse er help....my docs are turning away

do you yourself have pelvic rsd? I would love to know more about your struggle with it if that is the case i have not met anyone else with pelvic rsd

[QUOTE=belichkah;893283]do you yourself have pelvic rsd? I would love to know more about your struggle with it if that is the case i have not met anyone else with pelvic rsd[/QUOTrecurs

Yes I have had pelvic perianal vaginal rectal rsd for five years.
Spread to digestive system. Now full body. Just finally diagnoised. I can not even use the bathroom all is closing up descending swollen atrophied tight prolapsing....on top of all my other issues.

Please...I am confused as to who helps patients with pelvic crps. I am in big trouble. Water burns. Using bathrom rips me apart... I am unable to stand wk sit it is horrid... My pelvis is twisted and hard as a rock.... As is the ret of me.

Please...could someone list doctors that help with pelvic crps. My perinum. Has descended below my **** opening which is prolapsing with painful tissue swelling all my tissues are hard and red and shrinking and do painful.


Everyone is speaking if doctors in az? Could anyone please assist me with finding a crps pelvic perianal specialist. I've been searching and calling to no avail

Anyone can pm me and we can talk-even by phone
Love to all

I will help you try and find a dr. who specializes in pelvic rsd. Does it have to be in AZ?

[QUOTE=Lovelife;897815]

I hope someone on NT will be able to help you find a doctor in AZ, or anywhere in the country who specializes in RSD in the Pelvic area. I am so sorry this has happened to you. I prolapsed about 10 years ago. I can't imagin having the complications you are having to deal with. I will keep you in my thoughts and prayers. Just when I think my own problems are hard, I find a good soul like you. Please stay strong. I really do have a prayer list, and I know there are folks out there that can help you. This site will support you while you go forward to get help. ginnie

I've tried to find and reach b ingle...... Do you know of physicians who specialize in full body yet 95% pelvic/ab rsd......
Thank u for clearing this up