[Orrwhat]

Hello everyone,
This forum has been such a help to me. It carries so my much information and I feel there is people who understand what I am going through. As most of you know once you are diagnosed with CRPS your whole life has changes... Well my has defiantly changed in the past six months...

In Feb 2012 I had shoulder surgery. A few months after the surgery I was diagnosed with CRPS in my left hand, arm, shoulder and now in it has moved to my neck area and chest bone. I am currently on the following medications (please note: I was on some of them previously due to chronic migraines):

Imipamine *
Topiramate *
Cybalta
Inderal *
Gabapentin
Norco
Naprosyn

I currently do PT at home three times a day. I have had two never blocks done on the same day with some success. The next step in my treatment is a six week treatment program at the Sacramento Pain Clinic. Since my diagnosis with RSD I have noticed my legs and arms twitching alot. After that I have the option to try the Spinal Cord Stimulator's trail prior to the SCS. I would love to hear peoples experience with the SCS with shoulder and and arm injuries (where is it placed, recover time, how does it work, etc.).

Some times the twitching is very mild other times the twitches are strong. I checked the side effects on the new medications I have been introduced (*) but they do not indicate this as a problem. Has anyone else had this problem and if so what has your experience been? Mine seem to be getting alot stronger which worries me. Sometimes when I am walking it almost causes me to fall. All comments are appreciated

Orrwhat

[LIT LOVE]

Yes, in my RSD effected arm, and mirroring in my good one... So, no pain in the "good" one, but nerve issues including twitching and shaking, temp regulation issues, hair growth oddness, and redness.

And none of my meds are likely to be the cause. I'm mostly just on opiates at this point.

[Orrwhat]

Originally Posted by LIT LOVE

Yes, in my RSD effected arm, and mirroring in my good one... So, no pain in the "good" one, but nerve issues including twitching and shaking, temp regulation issues, hair growth oddness, and redness.

And none of my meds are likely to be the cause. I'm mostly just on opiates at this point.

Thanks Lit Love

Have you or anyone notice the twitches increasing in strength? Mine are increasing in strength and I am worried that it will affect my walking ability.

[Sandy Shores]

I similarly was diagnosed with CPRS after surgery earlier this year. One of the first odd symptoms I noticed, and tried to ignore by blaming my medications, was twitching. I can't say they have increased in strength or pain but are annoying. But I also started on Gabapentin and now Lyrica within a short time after they started. My doctor indicated these meds help to calm the nerves that fire off these twitches. I'm not saying the doc has the answer, but it might be worth asking your doctor about. Good luck.

[Vrae]

yep, i twitch in my digits, and my eyebrow, my eyes. Always random, and annoying.

[Orrwhat]

Thank you for everyones replies.

I have twitching going on in my legs, arms and mid body. They are very constant. I have about 20 per minute. I feel like I look like a crack head.... Is there medication to control this behavior? I left a message for my doctor this morning becase it seems like my twitching is getting stronger and more often.

[RSDcandice]

Originally Posted by Orrwhat

Thank you for everyones replies.

I have twitching going on in my legs, arms and mid body. They are very constant. I have about 20 per minute. I feel like I look like a crack head.... Is there medication to control this behavior? I left a message for my doctor this morning becase it seems like my twitching is getting stronger and more often.

I get really strong ones in my back, and my arms, my legs have them but they are not as strong. I dont have the strong ones very often maybe 4-5 over and hour. But my fingers have tremors all the time, as well as my toes. My eye lids/brows twitches a lot too.

hopefully you will get a callback from doctor soon,and find some relief.

[Orrwhat]

Originally Posted by RSDcandice

I get really strong ones in my back, and my arms, my legs have them but they are not as strong. I dont have the strong ones very often maybe 4-5 over and hour. But my fingers have tremors all the time, as well as my toes. My eye lids/brows twitches a lot too.

hopefully you will get a callback from doctor soon,and find some relief.

Thanks Candice! The doctors office called and he is out until tomorrow. So I should be hearing back soon. It is nice to have a support system in place that understands what I am going through.

[Sandy Shores]

Besides the Lyrica I also rake Klonopin. I believe both are also used to help with seizure activity.

[keep smilin]

Originally Posted by Sandy Shores

Besides the Lyrica I also rake Klonopin. I believe both are also used to help with seizure activity.

Hello everyone....

It has been a long time since I've chatted... I've missed you all...

I have had a twitch with my nose... oh, so noticeable and I feel like could be on T.V... It started even a bit bf I was officially dx.. I take Baclofen for temors too...


Soft hugs... kathy