[alt1268]

I saw on the RSDSA website they found that rsd type I and cyclic vomiting have a Mtdna match. And CoQ10 with other B vits are being used to treat.

[AintSoBad]

alt,
Pain begets all kinds of other things, and nerve pain certainly triggers nerves that cause nausea and vomiting.
If, perhaps I have a little too much tea, and my diazepam doesn't work, I keep 'Promethazine" rx, on hand, and it does the trick right away, it's cheap too!

Pete

[alt1268]

I have crps 2 and get sick every month. This last go around I was sick over 6 days with nausea after every meal. I see the GI dr. tommorrow. Hoping for zofran.

I just wanted to post the finding for type 1 because I am experiencing the cyclic vomiting but a type 2.

[alt1268]

Well saw th gi dr this afternoon. I took with me dr. Getson and H info on Rsd and gi problems. He told me but yours in ur foot. I tried to explain that it is the sympathetic nerve that is in dissray but he didn't want to hear. Started me on nexium and scheduled an upper endoscopy. We will see!

[alt1268]

Ok. I got to know everyone's opinion. In april I started having over 40 hotflashes a day. (started estrogen) better now. Now I have nausea and/or vomiting everyday. According to Dr. Hooshmand, this can be internal rsd.

No med. changes since oct.

Does anyone have internal rsd? what are your symptoms? could this be rsd or am I just having other issues?

[painman2009]

HI.. let me speak my mind on this.. 1 your dr.. the dr you just spoke about your crps/RSD dr.. you know the one that said yeah but your RSD is in your foot??? .. if so.. I suggest you say this very plain as day.. If he had any thought 1 in that melon of his he would visit the scripts you are on as for most pain meds.(especially the ones taken for long periods of time ), cause damage to the stomach and cause nausea.. and RSD can cause hat flashes . well from what I've heard from other RSDers any way. when I got nauseous I knew it was the neurontin.. don't know why I knew . I just knew, and I was taken off... guess what .. nausea ended. now with all the drugs I'm on I take vimovo.
this is like naprelan and nexium mixed..( ok not like "is") and since this no real stomach issues.. .. go over every thing with this dr. and if HE,SHE treats you like a child again . or like you are a hypochondriac. smack him and give him/her the web sites that all of us "had " to search so we could know what is going on with us . as most of us cannot rely on our Dr,s knowledge alone. (sorry that aggravates me) look what I really want you to trust is your own knowledge of your own body.. pay attn; to it as it speaks to you.. I am having issues with the itch on the RSD and I know when it started just not how yet. but I am fairly sure it isn't allergies. also now I don't want to pry or embarrass . but I know my next door neighbor has these same symptoms. and its on a schedule.. she is fairly young. and she is going though menopause . now I know you are on estrogen.. is it possible this is causing nausea . who knows but everything is worth checking out. and leaving RSD as reason for last. lord know none of us want RSD to be the cause of another thing.. I wish you well and lots of luck with finding your answers. and never let your dr,s make light of your situation.. and remember we all love you here and are here to listen and support you. godspeed.. or like Mork says... "NANOO, NANOO"

[alt1268]

I had to giggle at the first part of your message about the dr. using his mellon. I am scheduled for an upper Endoscopy on the 18th, if it shows nothing according to Dr. "H"he needs to do an emptying (which if it is rsd related will be delayed.)
I started estrogen after I started having hot flashes. They were just to much to handle. I would sit and try to read and I would just started dripping sweat. Horrible. Also, I had a hysterectomy several years ago because of endometrosis (sp) but up until April, have never experienced a daytime hotflash. Then boom 40 plus in a day.

anyway, you are right I know my body and I also know something just isn't quite right. I found 2 dr.'s who deal and are well known for dealing with rsd who both said these symptoms are not uncommon for us to have. But like you said, lets hope its something else. (its still scary to think this monster could be affecting my organs, and everything else.)
Thanks.
Anita

QUOTE=painman2009;893490]HI.. let me speak my mind on this.. 1 your dr.. the dr you just spoke about your crps/RSD dr.. you know the one that said yeah but your RSD is in your foot??? .. if so.. I suggest you say this very plain as day.. If he had any thought 1 in that melon of his he would visit the scripts you are on as for most pain meds.(especially the ones taken for long periods of time ), cause damage to the stomach and cause nausea.. and RSD can cause hat flashes . well from what I've heard from other RSDers any way. when I got nauseous I knew it was the neurontin.. don't know why I knew . I just knew, and I was taken off... guess what .. nausea ended. now with all the drugs I'm on I take vimovo.
this is like naprelan and nexium mixed..( ok not like "is") and since this no real stomach issues.. .. go over every thing with this dr. and if HE,SHE treats you like a child again . or like you are a hypochondriac. smack him and give him/her the web sites that all of us "had " to search so we could know what is going on with us . as most of us cannot rely on our Dr,s knowledge alone. (sorry that aggravates me) look what I really want you to trust is your own knowledge of your own body.. pay attn; to it as it speaks to you.. I am having issues with the itch on the RSD and I know when it started just not how yet. but I am fairly sure it isn't allergies. also now I don't want to pry or embarrass . but I know my next door neighbor has these same symptoms. and its on a schedule.. she is fairly young. and she is going though menopause . now I know you are on estrogen.. is it possible this is causing nausea . who knows but everything is worth checking out. and leaving RSD as reason for last. lord know none of us want RSD to be the cause of another thing.. I wish you well and lots of luck with finding your answers. and never let your dr,s make light of your situation.. and remember we all love you here and are here to listen and support you. godspeed.. or like Mork says... "NANOO, NANOO"[/QUOTE]

[alt1268]

ok. so I had my egd yesterday. Shows medium hiatal hernia with gastritis. Dr. says this would not explain the nausea and vomiting that I am still having 2 times a week or more.

So I told him the next step should be a gastric emptying which I will discuss in my f/u further with him.

I did start zofran and nexium. Thank GOD!

[pg2005]

I have CRPS II and issues with nausea/vomitting ever since diagnosis. It has only gotten worse over the years. Taking Percocet daily probably does not help. I'm on Zofran right now awaiting SCS placement. If the SCS doesnt allow me to get off some of these meds I'll have to see what's really up with my GI system as I've never had a work up before.

[alt1268]

According to dr. H are gi system slows down and this causes the stomach upsets. So my next step is a gastric emptying