Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-01-2012, 08:33 PM #4
tkayewade tkayewade is offline
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Join Date: Jun 2012
Location: Texas!!!
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tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
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Rsd is so different for everyone. It sucks, but it's basically Trial and error until you find what's right for you. My scs seems to have worked out, but others haven't. I had zero success with neurontin. Others do great with it. Right now, I take topomax, welbutrin, Valium for jitters/sleep issues, and dilaudid( which weareweaning out), and naproxen. weaning down from pain meds seems strangeafter all this time. That's exciting for me! I also take some supplements b-12, vitamin C,and calcium/vitD due to such poor bones from the rsd. Anyway, hopefully you will find a combo. Lots people like creams and patches but they never worked for me.

Oh also never leave the house without pillows. Two or three different sizes. Ican always use them for something lol.

Hopefully we can keep spreading the word of this awful disease and People will start figuring out it needs attention.

Feel better soon!!!


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