Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-04-2013, 11:14 AM #21
CRPSsongbird CRPSsongbird is offline
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I learned long ago that many people who say they are friends.....aren't.I have very few friends. But the friends I DO have are real friends. The type of people to be there when you need them. Everyone else is just an acquaintance. Nice people to talk to or hang out with once in a while, but not solid like family. They're the gossiper's and two-faced people that can pretend like they want to help or understand,but are the first to say something negative about what's going on to someone else.

Keep those few GOOD friends, and forget about everyone else! Trust me it's better! I do hope you can find someone to lean on soon though. Life it a LOT harder without that support when you need it!
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Old 01-04-2013, 11:26 AM #22
andrea puskas andrea puskas is offline
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Default It is not you..

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Originally Posted by lexiegirl250 View Post
Hi, I was diagnosed with RSD a couple of months ago. I know that I have had it longer because I have been in pain for over a year. It gradually got worse until I could not work or focus anymore. I have been through some real hard times over the past few months. I went out on medical leave in May and came back to work in early July. A lot of people that I though were my friends don't really seem interested in spending time with me anymore. I don't get invited out to lunch like I used to. They ignore me or barely say "hi" once in a while. It makes me sad that they treat me this way. I feel like a lot of the people in my office are acting this way towards me. It is hard enough to deal with the ongoing pain issues I have (it is still bad) but to have "friends" treat you like this is wrong. Maybe I don't smile as much anymore because I am hurting all of the time, but I am still me. Has anyone else had friends or suppsoed friends act like this and basically ditch them?
Hi Lexi, You are not alone in this. Seems to be a normal thing. RSD is so hard to explain people get lost in the begining of the explanation. I am in this 22 years and have been where you are too many times. It is wonderful you found this group to share with. I have been away from here for awhile, so just saying hi and letting you know you are not alone.
Keep your chin up and I will add you to my prayers for understanding ourselves and feeling less alone. Hope to hear back.
God bless us all, Peace & Luv, Andrea


It is not you Lex,
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Old 10-22-2014, 01:14 PM #23
Keekans Keekans is offline
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Quote:
Originally Posted by lexiegirl250 View Post
I agree. One person told me that me nerves are shot because I ate candy as a kid. I was like "are you kidding????" At first I used to get mad with these comments, but now I sort of just roll my eyes and keep it to myself.
Yeah I'm at the point where it's funny to me. Opinions are like assholes, everyone has one. I just try to remember that they're trying to help and it's coming from love. For a long time it would make me angry. I felt like everyone was looking down on me. The truth is some were but I was looking down on me and letting them get to me. I also, thought everyone thought I was making it up or I was crazy. I wondered if I was sometimes. I felt so bad about myself because I didn't know how to function with a disability. That made me hate myself for a while. Now I'm just trying to be patient with myself and take this one day at a time.
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Old 10-23-2014, 11:37 PM #24
happygirlpa happygirlpa is offline
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Default left in the dust also

I have been dealing with crps for four years. I too was left in the dust as far as friends go. My crps affects my right hip and leg which affects my ability to do alot of things. I just cant keep up with them anymore. My family included. We had to really come to terms with this because i cant mother them the same as before. Some days i cook, some days i dont. The house isnt as clean either. I dont go dancing, hiking, or take road trips. I am not the old me. I've had to find new hobbies which led to new friends and slowly i am rebuilding my life based on my abilities. Good friends hold on thru the turmoil and metamorphasis, others just dont. Try arranging something with your friends that you can manage. If not a home cooked fancy meal, maybe pizza or a drink after work.
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Old 10-24-2014, 09:41 AM #25
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Welcome happygirlpa.
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