I think everyone with this condition feels lonely in some way or another. I think people distance themselves because they don't understand and can't psychically do anything to help you to feel better. In my experiences people will tell you all these things you need to do and when they don't work they just figure you're not really doing it. I've heard everything from family and friends. If I become a vegetarian or eliminate white bread, flour and pasta from my diet. The most outrageous one was from someone who wanted me to go to a past life regression therapist because my pain is caused from traumas in a past life. Everyone thinks they know what I should do and I've tried some of them but some are seriously ridiculous. It's seems like it easier for people to judge then just be supportive.

I think everyone with this condition feels lonely in some way or another. I think people distance themselves because they don't understand and can't psychically do anything to help you to feel better. In my experiences people will tell you all these things you need to do and when they don't work they just figure you're not really doing it. I've heard everything from family and friends. If I become a vegetarian or eliminate white bread, flour and pasta from my diet. The most outrageous one was from someone who wanted me to go to a past life regression therapist because my pain is caused from traumas in a past life. Everyone thinks they know what I should do and I've tried some of them but some are seriously ridiculous. It's seems like it easier for people to judge then just be supportive.

I also feel that since people dont know what to say to us they avoid us altogether. I lost friends as well. Maybe part of that was my fault because I tended to turn down invitations with a lame excuse and people stopped asking.

I have very few friends and my family doesn't talk to me either. It's kind of sad. Luckily I have some friends here amd some other pain groups on facebook. This disease is so isolating. Now I have blood clots in both lungs and missed more work so I'll probably be fired, so I guess I'll have bad recommendations too. it is depressing. I take 300 mg of welbutrin a day and still feel sad. I think it's just the loneliness of this disease. I hope you feel better soon!!

TK

Hi, and you have friends right here. It isn't just RSD that isolates. Anytime you have a disabiltiy, or are in pain, you really do find out who your friends are. Some Folks just don't get it, until it happens to them. Keep posting here, NT will be here for you. ginnie

. I take 300 mg of welbutrin a day and still feel sad. I think it's just the loneliness of this disease. I hope you feel better soon!!

TK

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Be sure you don't take the generic form of Wellbutrin. I believe it's been recalled because it's ineffective. Hugs.

I agree. One person told me that me nerves are shot because I ate candy as a kid. I was like "are you kidding????" At first I used to get mad with these comments, but now I sort of just roll my eyes and keep it to myself.

I am sorry about your job. Employers don't understand either. I took 6 weeks off of work and it was bad for me too. It is so isolating. What pain groups are on facebook?

The saying, you find out who your friends are, is very true when comes to rsd. Have had it several years n am 30 now. I lost alot of great friends i thought would always have my back........but i have also gained some amazing friends who are literally here for me even on my worst days. Will just come lay in bed if thats all i can do. Know it is extremelyyyyy hurtful, but hang in there!!!!! Theres good people out there......ones that will not treat you differently bc u have rsd. Of course, all of us here have your back as well!!!!! Hope things get better!!!!

When you know which one it is, you will know what to do with that person.

When someone is in your life for a REASON it is usually to meet a need you have expressed.

They have come to assist you through a dificulty…

To provide you with guidance and support…

To aid you physically, emotionally or spiritually…

They may seem like they are a godsend, and they are.

They are there for the reason you need them to be.

Then without any wrongdoing on your part, or at an inconvenient time, this person will say or do something to bring the relationship to an end.

Sometimes they die…

Sometimes they walk away…

Sometimes they act up and force you to take a stand….

What we must realize is that our need has been met, our desire fulfilled…

Their work is done.

The prayer you sent up has now been answered and now it is time to move on.

Some people come into your life for a SEASON.

Because your turn has come to share, grow or learn.

They bring you an experience of peace or make you laugh.

They may teach you something you have never done.

They usually give you an unbelievable amount of joy.

Believe it, it is real. But only for a season.

LIFETIME relationships teach you lifetime lessons.

Things you must build upon to have a solid emotional foundation.

Your job is to accept the lesson, love the person, and put what you have learned to use in all other relationships and areas of your life.

It is said that love is blind, but friendship is clairvoyant.

Thank you for being a part of my life…

Whether you were a reason, a season or a lifetime.

~ unknown author