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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Update on my kiddo

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Old 03-07-2016, 09:50 AM #1
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Default Update on my kiddo
Just wanted to peek in here and give a quick update on my daughter. We're in week 5 of an intense outpatient rehab program for kids with chronic pain. My daughter started the program in a wheelchair with severe allodynia, no shoes or socks on her right foot at all. She's 10 now, she was 9 when I first posted in here. Now at week 5 she is wearing shoes and socks 8+ hours a day, and she has been out of the wheelchair for a couple weeks, and today will be down to one crutch, with hope for crutch free steps by the end of this week. She still has pain, but she is getting functional, and learning so many ways to cope. The Drs say that the pain is the last thing to go.
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Old 03-07-2016, 10:12 AM #2
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That is amazing! Thanks for sharing her success.
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Old 03-07-2016, 10:37 AM #3
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Fantastic news...she continues to be in my thoughts. Wishing her the best of luck at a full remission.
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Old 03-07-2016, 11:08 AM #4
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Wonderful news!!! Thank you so much for updating. Continued thoughts for improvements!!!
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Old 03-07-2016, 11:17 AM #5
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That is wonderful. It is always nice to hear when things are improving, especially for the younger ones.
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Old 03-07-2016, 03:12 PM #6
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So happy to hear this wonderful news! It sounds like you really made a smart choice with that program for your daughter. Way to go Mom! And she is making such great progress. You must be tremendously relieved.

I will continue to send healing thoughts. Thanks for the awesome update.
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Old 03-07-2016, 03:23 PM #7
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Your great news made my day! Thank you!
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Old 03-07-2016, 08:08 PM #8
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What wonderful news! Thank you for sharing her progress with us.

:-)
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Old 03-08-2016, 08:36 AM #9
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Thanks This is the best forum I've found online for CRPS support. You are all wonderful.
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Old 03-12-2016, 09:57 PM #10
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so glad to hear that your daughter is doing better! that is awesome. i hope she continues to get better every day. soft hugs.
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