Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-09-2014, 02:11 PM #1
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AZ-Di AZ-Di is offline
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Location: Arizona
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AZ-Di AZ-Di is offline
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Join Date: Mar 2013
Location: Arizona
Posts: 453
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Default New Drugs - anyone else?

I haven't put my own post on here for awhile, but have been keeping up with most of you. So maybe some of you can add an opinion.
I'm starting to feel like a human chemistry set.

Most of us know there is no medicine for CRPS/RSD & everything we get is "off label" & made for other diseases/conditions and may happen to work for us.

Mid November my P.M. Dr. rx'd 2 new drugs: Topamax (for migranes) for me to try. I took it for about 6 wks. It did not seem to have any effect, other than G/I issues so I stopped. I did not want to try 2 new drugs at the same time.

So, now I'm on day 6 of taking Namenda (for Alzheimer's). I guess she thinks there is some connection of how the drug works on the nerve reactions in the brain.

I'm still taking Cymbalta, low dose Lyrica, Baclofen and I still get Stellate Ganglion blocks about every 3 weeks. I've had 20-21 of those & I'm really tired of getting stabbed in the neck and being a zombie for the day.

I'm past a year mark with this. I hate to use the term "give up", but has anyone else just stopped with all the experimentation and found a way to
just settle for the disability and cope?
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
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