Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-20-2007, 12:18 PM #1
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Hey Mark,


Very good to hear from you, thanks for the update - Jose hit it all on the nail, as usual....love ya LOTS! Take care,

all the best
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Old 04-20-2007, 03:07 PM #2
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Default Angel Food Ministries

Mark, Sorry to read you are having such a tough time. Don't know if this will help you, but there is a wonderful food program Angel Food Ministries that once a month you can order food for cents on the dollar. This is a program across the USA. Go to their web site and type in you area of the country to see if your town belongs to this program. Some places will deliver if you are unable to pick up. You do not have to prove need and the food is good. Usually the churches in the area are the ones you contact, some put booklets in with the food, if you are not interested in their belief system drop it in th trash. Also if there are any Mom and Pop restaurants in you area call and see what they do with their leftovers. Where I live the community has a program where the food is gathered from the restaurants, plated and frozen. People can pick up so many meals a week. In the USA no one should go hungry or be maded to feel belitted because of need. For every Bitc* you will find many more angels---you just have to know where to look. Take Care, CARose
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Old 04-20-2007, 08:31 PM #3
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Default Pat Pat Hug Hug!!!

That's me patting you all on the back and hugging you all for being there for me once again. What would I do without you??????????? I ask myself that question all the time. Whenever I feel the chips are down and I do mean down there is always you guys ready to help.

I never thought all my life growing up in what I guess could be defined as a upper middle class family, would I find myself worrying about such things as my next meal or wondering where I would be living. Now it hasn't quite gotten to that point yet, however I am not so arrogant in assuming that it could not happen tomorrow. And just when I think there are all the agencies out there ready and waiting to offer a helping hand - WRONG!!! They may be in fact out there, but they are not waiting to help me.

But I have decided after I wrote to you all this morning I took a breather and than I called my attorney (disability that is) and pretty much dumped it in her lap. Well considering she is going to get paid and I'm sure she won't be cheap for her services when all is said and done she was more than willing to help. She is going to contact the witch tomorrow and set up a appointment for me and than she is going with me.

I figure if I can just keep my mind clear of negative clutter than the rest is candy! I can handle the physical pain. But when someone plays with my mental state I have issues with that. I am so short fused these days with people who take advantage of the disabled. Bring em on!! Anyway, that's about it for now. Please everyone take really good care of yourselves and i as always am thinking of you!!!!

Chin Up!!! Mark xoxoxoxoxoxoxoxoxoxoxoxoxoxoxo
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MARKY MARK THE MAN FROM MAINE...GOT RSD AND LOST HIS BRAIN!!!. AND NOW HE HAS TO USE A CAIN!!!
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Old 04-20-2007, 09:05 PM #4
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Thumbs up Always glad to hear from you..


Kool sounds like a no nonsence atty things will be better
Sandra
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Old 04-21-2007, 12:03 AM #5
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Hey Mark

Big hug - gets!!!! Sounds like life is really kicking you in the teeth right now. I totally agree - in some ways the being taken advantage of and being treated like you are STUPID for being disabled does not change culture wide. Good old UK is full of the impression - cripple = stupid instead of modern society = stupid.

Really hope things get sorted for you!!! Sounds like taking the attorney with you would be great - they might listen then. Are you living with your family now? I remeber you saying something about it. If not then are there are community programs that could help you with day to day stuff (if you are living alone - it just sounds like you are struggling to manage stuff at the moment). In the UK it is possible for some people in some areas to have community volunteers help with simple stuff like basic meals, shopping, tidying etc. just a thought. Are you not eligible for welfare?

is it me or is this US system a TOTAL farce??? When I lived in CA our neighbour had quadraplegia - and we worked out I recieved a higher amount of benefit from the UK system than he did! and that was with me using a wheelchair but not needing 24 hour care. TOTALLY bizzare!

Anyway - sorry to digress

Just wanted to say that I hope things improve soon and sending you tons of love

Froggsyxxxxxxxxxxxxxxxxxxxxxxxxx
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Old 04-21-2007, 08:07 AM #6
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Default Hi Mark,

I'm glad to see you post, I do hope you stick around. So many of the oldies have left in the past few months again.

Sorry that you are having such a bad time with everything. I went down to sign up after Bill passed because I lost his income and I got them one month and then was cut down to 10. a month. I haven't yet but I am just going to tell this witch that she can stick them where the sun don't shine. It's just crazy that a person has to go through this.

Has far as SS. Bill was gone 5 months today and as of yet I still don't know what I will draw. I have gotten 8 different letters and not one of them had the same amount on it. They waste all of the money they should be giving the people on stamps and paper.

I know you have an attorney but I was going to ask you if you ever wrote to the State Rep or Govenor. I don't remember if you did. A State Rep helped me get my disability in one week after I contacted him. What I did was hand write him a 2 page letter describing what I was going through and sent him part of my file which what I sent him was about 1 to 2 inches thick. I stayed calm and explained it as smartly as I could. That's saying a lot for me. I didn't show anger in it though, I believe that hurts at time or to talk negative about the SS people hurts too. Gigglebabe had the help of one or the other to get hers also. This might help you if you will try it.

Anyway, I do hope you start seeing better days and come back to stay.

Have a good day.
Ada
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Old 04-21-2007, 08:11 AM #7
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Hi Mark,

Keep hanging in there! Things will get better! I will keep praying for you.

As for Social Security Disability I was denied two times and am waiting on a hearing and it will be three years in July since I applied. My case has even been sent to another state because of the back log in my state.
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Old 04-23-2007, 09:04 AM #8
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mark,

sorry to hear that u r not doing so well......and sorry to hear that u ran into one of those people whose only claim to distinction is that she is currently in better health than u r.

hang tough, big guy......we miss u and want the best for u.

liz
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Old 04-24-2007, 12:53 PM #9
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http://rsdrx.com/Social%20Security%20Ruling.htm

I printed, highlighted, and sent this to disability with my appeal (they denied me). The lady from disability called me and said yes we have codes for CRPS/RSD. We just need your doc to fill out this form stating it and we're good. My doc is doing as we speak.

This is for SSI (permanent) however, I mentioned that SSI accepts this as a disability then my state should also and I should not be denied.

Good luck.
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I AM NOT A DRUG SEEKER,
I AM A PAIN RELIEF SEEKER.
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