I know that a patient at my pain centre has RSD in his/her bladder. I have never met him/her and only know by what my doc and nurses have told me.

I have RSD in my vulva/vagina , which is why I know about the aforementioned patient. My specialists were explaining the ways RSD can attack internal organs.

(My RSD started in my right foot in 2007 btw: remained static until 2011, then rapidly spread throughout entire lower body to hip areas. )

Alice

Dear Alice - I have RSD in all four limbs - systemic. I am due to have a D and C in Jan and my PM doc says you cannot get RSD spread in the female organs ... hence not to be concerned about the D and C. Any advice?\thanks

I sally sue, sorry to hear of your full body rsd. I have full body too, since 1996.Please research rsd and the d&C procedure fully. www.rsdrx.com has some information about rsd and internal organ involvement. puzzles 1-146 has information under puzzle #34 and #127. You might look up the info on 127 and research it. I've had a d&c years ago, but before rsd. Dr. Hooshmands website is still up, but I believe he retired. That question-127 mentioned interstitial cystitis
I have looked it up, but will do some research on it myself. Hope this helps. I know I'm scared to death to even go to the dentist for fear of getting rsd in my mouth. I take an antibiotic before any procedure, and 'laughing gas' to relax/ Others have said we can get rsd in our mouth. Hope this helps- your friend, loretta

Hi Alice, sorry about your spread and internal organs. I mentioned www.rsdrx.com then go to puzzles #34 and #127 have information on spread to internal organs including vulvodynia.
I've had RSD for 16 years now and just found out I have blood in urine so now checking out more tests to find out whats going on.
What is the plan for your internal involvement? Is there any treatment?
Hope you did some effective treatment. Your friend, loretta