Originally Posted by Neurochic

I know first hand how draining it is to have to fight the medical profession once you have a diagnosis of CRPS. It's hard going and it does feel like you have been 'dealt a bad hand' sometimes.

I appreciate from what you have said that you have lots of complications and no formal diagnosis of CRPS. It's difficult because it can be very tricky to diagnose and many of the clinical signs and symptoms are found in other conditions or as a result of other injuries or problems. It's only my personal view but I do think its risky to assume that everything going wrong with your body is a consequence of the CRPS. I tend to do the opposite and assume its nothing to do with my CRPS until I can try to have any other cause ruled out. It isn't always easy or possible but I figure that way I'm not leaving potentially serious thing un-investigated.

The hypertension you have had since you are a toddler is a well known and common cause of vascular kidney problems later on. These vascular problems are not the same as the vascular problems that can be caused by CRPS or malfunctioning of the autonomic nervous system. Hypertension (high blood pressure) is a leading cause of the vascular damage which leads to kidney disease and kidney failure. That is why this risk was identified early on in your childhood when your hypertension was identified.

Please go and get your kidney problems properly checked out. For the reasons I've mentioned it's highly unlikely that this has anything to do with CRPS and as I'm sure you will appreciate, end stage kidney failure means a person needs dialysis or transplant. I know you are tired and fed up with your treatment but you need to have this checked out.

Originally Posted by Neurochic

"My neuro did think that the vascular issues are all linked to each other in some way but didnt know how."

That doesn't inspire much confidence does it?!! Maybe he should leave the real medicine to someone who knows one end of the human body from the other!!!

Originally Posted by tos8

Ok we just got a report from my neuro that my old neuro wanted me to see a nephroligist because he thinks theres evidence of vasculaler kidney problems. Now heres where it gets complicated, I have had hypertention since i was a toddler. So yes theres always been that thing as to where at some point in time i could develope problems with my kidneys. However this is maybe vascular issues. So does anybody have any issues with RSD attacking there kidneys? Because its only gonna be narrowowed down to 2 things. RSD or hypertention. And im leaning towards RSD. So can anybody help me out?? Exspecially since I see my new PM next week and he has no idea how to manage RSD.

Originally Posted by sallysue

Dear Alice - I have RSD in all four limbs - systemic. I am due to have a D and C in Jan and my PM doc says you cannot get RSD spread in the female organs ... hence not to be concerned about the D and C. Any advice?\thanks

Originally Posted by whereisfunkytown

I know that a patient at my pain centre has RSD in his/her bladder. I have never met him/her and only know by what my doc and nurses have told me.

I have RSD in my vulva/vagina , which is why I know about the aforementioned patient. My specialists were explaining the ways RSD can attack internal organs.

(My RSD started in my right foot in 2007 btw: remained static until 2011, then rapidly spread throughout entire lower body to hip areas. )

Alice