Heya

I can't remeber what post goes where... so thought I'd reply to what Ada said a couple of days ago (I think) about replying to people's emails - especially newbies.

I do find it very hard to reply to newbie posts because of my RSD - I don't want to scare people by going "and if you are unlucky you will turn in to me". I personally don't feel it's something that I should subject somebody to.. it's bad enough feeling horrendous with this disease and getting newly diagnosed with it without...

"Hi, I'm Frogga, I'm 21 and at university. I have had RSD for 5 years since a fall when I was 16. It is now full body and I have severe full body dystonia and other neurological damage from the RSD. I have been in a wheelchair for the last 4 years and I need 24 hour care and help with everything and I am turning in to a human pretzel...........

..............but don't worry. You'll be fine!"

just feels a bit mean sometimes!! it's why I don't tend to get to know newbies till they settle in... I don't want to trivialise what others are experiencing and I really do try not to do this on the forum - as everyones pain/ disability is unique to themselves - but I know from experience that sometimes posts can become really personal - or at least feel it!! (like - well, you can't POSSIBLY have the same amount of pain as me because you can walk etc - which is total rubbish).

I guess I just don't want to be scary!

Love

Froggsy xxxxxxxxxxxxxx