Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-01-2013, 07:27 PM #3
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Quote:
Originally Posted by catra121 View Post
I wouldn't worry about the "being disabled" thing...just be yourself. I wouldn't try to hide anything but I probably wouldn't make it the topic of conversation either. Dress comfortably for sure. Wouldn't necessarily wear PJs...but don't wear anything that will make you uncomfortable. As far as what to wear or how to prevent flares...it's hard to say because we are all so different. Air movements and cold can cause flares for me so that generally means being all covered when I go out. Not sure where your RSD is...but if Lidoderm patches, lidocaine cream, TENS unit, or heating patches help then I would put those on before you leave and wear them while you are out. If you have pills you take to help keep the pain low then I would make sure you take what you need before you go out. And definitely make sure to bring anything with you that you might need in case of a flare. I never used to wear a purse or if I did it was always something very small. Not anymore...I have this big black purse that I can put all my "flare kit" items in. Take it easy and don't over do it.

But as far as the actual date stuff...just be yourself. He can either take it or leave it and if he leaves then he wasn't the right guy for you anyway, right? But don't worry about all that. If RSD comes up in the conversation then talk about it...but don't dwell on it or get caught up in talking about the horrors of living with this monster.

With my boyfriend...it's really great because he never treats me like I am broken. He respects and understands my limits...pushes me to do as much as I can but never more than that. It's a great mix. Remember that you are NOT your pain or your RSD. You are still you...a person...and you HAVE RSD. Don't let it define you and don't let others define you by it.

Good luck! I will keep my fingers crossed that you have a good time.
Thank you so much. You helped put me at ease a little. It is hard dating and having CRPS doesn't make it any easier. lol I am going to just relax and have a good time. I will be prepared as best as I can be when it comes to flare ups and just hope one doesn't happen. Thank you for all your advice, and reminding me that this doesn't define me!
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