Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-27-2013, 08:44 PM #1
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Let's start off with the fact that it's still possible you have RSD. Not everyone has all the symptoms and over time some may go away while others start up.

That said...if there is something else that could be causing your symptoms then that might be great news. When my RSD spread we honestly tried to rule out EVERY possible cause for the new symptoms before attributing it to spread of the RSD. This can be a long process but you really need to go through the elimination process to make sure you're not missing something that could be treated.

It WOULD make me a little hesitant that this new doctor DOESN'T have experience with RSD...but that doesn't mean she's not the right doctor for you. She may be the perfect doctor if you have something else and she is able to diagnose it.

As for the bone scan...that's really your call. I have not had one and don't see the point for me personally. No one test can conclusively prove you have RSD...though there are many tests that could prove you have something else. Regardless of what the bone scan shows it would not do anything to "prove" you have RSD. It is sometimes used to help confirm a diagnosis of RSD...much as some doctors use blocks to do the same...but even if it shows nothing that doesn't mean you DON'T have it.

So I would basically just proceed with caution. Go through the elimination process to make sure you don't have something else...but be very cautious of things that could make the RSD worse or cause spread like ice or aggressive PT until you know if it's something else or not.

Good luck and I will pray for your sake that it is NOT RSD.
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Old 03-28-2013, 01:56 PM #2
reluctant@thetable reluctant@thetable is offline
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I have crps and my foot changes to a beautiful blue and swells when I'm sitting. When I raise it, the nice pink color returns. My PM said that is typical with crps. Educate yourself as much as possible. Read everything you can about crps/rsd. Hope you don't have it and it's great that your doctor is ruling out everything else like peripheral neuropathy, diabetes, nerve entrapment. With crps, alot of the diagnosis is ruling everything else out. Good luck.
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