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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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Are there any particular clothing or material that bothers people with RSD?
I saw a sweater and a dress that I knows she would like but she been acting like the only clothing that she is allowed to wear are sweats and tshirts. Is this a RSD thing or a girl thing? I am planning to take her out to a special place and I got her clothing sizes from her mom to get her a dress. |
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#2 | ||
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Member
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Its a both thing. If she is more comfy in the softness of the sweats then I can understand. I have RSD in my left knee and starting to go down toward my foot. Really soft clothes feel better also lighter weight clothes feel better when it hurts. I have a pair of sweat pants I have had for a long time and as soft as they are now I feel more comfy wearing them than I do really nice clothes that are stiff and abrasive to the skin. Also the looser the clothes are the less likely they are to rub.
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#3 | ||
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Senior Member
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I have CRPS in my left side, especially my leg and foot, and clothing is a BIG issue!!!! As time goes on and my symptoms have worsened and spread, fashion becomes less important and comfort is everything... I wear the same soft jersey fabric trousers nearly all the time, in two different colours. If I wear different trousers it can only be for a limited time.
I had to shop for shoes today, I've been wearing ultra soft and comfy snow boots, but I can't do that when the weather warms. I selected the shoes in the end based 90% on comfort, and only when I had chosen the style did any colour choice come into it. The thing is, if I'm not comfortable then my pain levels rise very quickly, to the point where I don't enjoy myself at all and even have to just quit and go home... I'm betting your girlfriend does NOT want that to happen. I very rarely wear a dress out because I would have to wear smarter shoes...and smart = uncomfortable = pain. I would guess that your GF has a limited choice of clothes she can tolerate, hence the limited wardrobe we sometimes seem to have!! This is a sticky issue for a woman, because the CRPS will already have seemed to take away so much of the things others take for granted. She may well feel anxious already about her wardrobe, lack of perceived style, comfort etc. I would tread carefully here and see what she would be comfortable with. If you present her with an outfit that you have decided is suitable, she may dislike it for reasons of both/either comfort or style, but not want to let you down or seem awkward by expressing that. She might then not enjoy herself or even suffer because of it. Tell her the occasion, and let her decide what to wear. Whatever she decides, accept it happily. She will already have been through the wringer just deciding to go, thinking what she can wear, whether it'll hurt and she'll need extra meds before, if you'll like it, if her parents approve, if anyone else notices her 'issues'.....etc etc etc ![]() Sorry if this complicates things!! Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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#4 | ||
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Junior Member
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It does not really complicate things for me. It actually makes things more simpler to understand. She has lost a lot of weight and have not really dated for a long time.
Your advice give me the understanding that choosing the wrong clothing for her can make her more anxious and she starts getting into more pain. Now how about if she tries on the same dress of her choice several times and keep looking at her self, smiles, and asking me what I think. Do you think that is a dress she would want to wear even with RSD? BTW, she is a lot older than 18. ![]() |
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#5 | |||
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Member
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Clothes definitely matter! I have RSD in my face, both hands, both shoulders, left arm, left leg, both feet, abdomen and head. Winter was much easier with sweats and Uggs. I just bought some capris that are like t-shirt material and have an elastic waist for summer. Buttons are an issue. I stopped working at the end of December (because of my RSD), but when I was still working I stopped wearing skirts and dresses because of the shoes. There are many dresses out there that are plenty comfortable and I would rather wear them over pants and a shirt, it all depends on the style and material...and shoes!
I think if you buy her something that she picks out and is comfortable for her to wear, she would feel better in it and appreciate it more. If you pick it out and she is not comfortable in it, she might have a hard time explaining or expressing that to you. I commend you for taking the time and caring enough to inquire about RSD. There are not many out there that are that supportive and caring like that. I am very lucky that my husband is one of those good ones too ![]() Nanc |
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#6 | ||
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Senior Member
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Quote:
And yes, if she's smiling and moving round in the dress, and keeps putting it on, then it means she likes it but wants to know you like her in it ![]() I'm over 40, but I don't think any woman EVER stops wanting to look nice or be appreciated when she makes an effort to look good! I hope you both have a lovely time ![]() Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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#7 | ||
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Magnate
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I definetly have issues with clothing for ex I can only wear one type of socks which I turn inside out because they are softer. I also only can wear tennis shoes. I think everyone is different as stated from here.
I do know for me that the more I stay away from a material the harder it is for me to adjust again. There are some things though I just can't tolerate and for someone else to purchase for me would be near impossible. When I have had a nicer outing like a special dinner to go to my anxiety does rise because I have no clue how I will tolerate the items I need to wear. If you are helping her maybe do some pre online browsing. You may have to get a little creative. |
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#8 | |||
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Member
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Senathon
I agree with everything said here. Fabrics and design do matter. Think soft and comfortable. Just to add one more thing ... I cannot stand when my slacks/jeans hit the top of my feet. Sounds odd, but it is really painful for me. Fortunately, the weather is changing for the better. I opt for capris or shorts. If I'm going someplace nice, I opt for a loose nit dress.
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Djhasty - CRPS Type II with migraine, Dystonia and spasticity - Diagnosis 2010 following - Injury 2004 L5S1; 2nd metatarsal left foot fracture; left hip fracture |
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#9 | ||
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Guest
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I am ultra-hypersensitive and cannot have any material touching my arm upto the elbow. Just putting on a sweatshirt and pulling the sleeve upto the elbow is like a thousand razer blades being dragged up the arm
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#10 | ||
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Member
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Thats how I am! except mine starts at my shoulders. So I have a few tshirts I was able to find at american eagle and it has to be from the mens because the womens dont have the same fabric, and its a cotton, but its diffrent, and there the only ones I can wear. And it can only be short sleave. I have a north face coat that I will wear, but I got it in large, where i would usally get a small, but i have a large so that way its night even close to being tight against my arms. And since during the summer it gets way to hot here and i cant stand the sun hitting my arms because it feels like a thousand razor blades, I will wear my northface jacket.
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