When I was still able to work, and my employer wanted to know "what is wrong with you" and I told him Reflex Sympathethic Dystrophy -- he said "so, it's some sort of mental issue where you want sympathy?"

I still say RSD because I had it before they thought up CRPS.

And, I truly believe I have this crud in my spine - it's been bright red along my spine for more than 3 years and no one can figure out why... and has the same burning, pain etc. as my foot and arms do.

Not so "regional"

My family doc actually said to me - how can it spread to your spine? the name even says "regional" because it stays in one limb.

It's all so confusing. For us and the doctors.