Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-20-2013, 11:23 PM #3
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Vrae Vrae is offline
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Vrae Vrae is offline
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Join Date: Apr 2011
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Quote:
Originally Posted by zookester View Post
Hi Vrae,

I too have that "live wire" pain as you describe... do you mind sharing how long from diagnosis before it was full body? Was your nerve injury a complication of surgery or something else?

Kindly,
Tessa
Hi Tess,
Thanks for your response!

Yes, I woke from an L5 S1 discectomy surgery with CRPSII in 2004. The disc had ruptured.

I guess it took about four years to start moving/ mirroring in my left limb, and it has been a slow progression elsewhere ever since. I have had it in other places like my arms, hands, face, back and torso in the last few years. The upper body becoming more and more effected all the time now.

My surgery: I was supposed to be in and out in three days. It seemed like nothing went according to plan. They nicked my dura during surgery. I was to lay flat for seven days in the hospital as to avoid a headache they would not be able to control. I was also paralyzed from the waist down during that week. I had to learn to walk again when I was finally allowed to get up, which was done over the course of a day by raising the bed upright in small percentages. The doc also over stretched my nerve root.
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