Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-29-2013, 10:50 AM #1
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Cool Smirk The sun is shining.....and I'm sad I can't do much...

Right. I'm giving you fair warning - this is a small rant at Sods Law. Or Crips Law as it now is... I'm ok, just having a moan at the sun, bless it, which is making me wish I could go out and enjoy it!

So, today. It's a lovely day. Husband has been rowing, elder daughter went to town with a friend, youngest went to the park to play...

What have I been doing? Sat inside wondering why my feet and leg choose a nice sunny Saturday to really fire up so that everything I do today has to be in 5 minute slots of time.

1 load of laundry in the machine, laundry room tidied.....5 minutes
SIT. OUCH.
Unload dishwasher, reload it, tidy kitchen a bit....another 5
SIT. OUCH.
Play piano for 10 minutes
SIT. OUCH.
Collect all upstairs things in a box ready to go back to where they should be...
SIT. OUCH. OUCH.

You get the picture!

I want to be outside in the sun wandering around town, getting the last few bits before we go away, choosing a t-shirt, taking my kids to buy a few things for themselves. Watching them laugh and pick ridiculous things out for fun... I was going to go in today, but by the time my husband returned from rowing, it was clear today was not a good day to do even the tiny route I had planned in town. My feet and knee have been so painful every night recently, I can't bear the thought of them being even worse because I've ignored the warning signs. But I feel a real wet blanket for staying home while they go out. 'Poor mummy with her bad leg'....sigh...

Days like this all my usual resolve and bravado just melts away, and I so WISH I was the old me again....slim and energetic and fun, doing twenty things in an hour and chasing my kids around in the garden. Now I feel fat and slow and a burden every time I do go out.

I HATE CRPS!!!!!!!!

Hope you are all having a better afternoon

Bram
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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