Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-14-2013, 09:27 PM #23
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Djhasty Djhasty is offline
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Join Date: Nov 2012
Location: Omaha Nebraska
Posts: 142
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Djhasty Djhasty is offline
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Join Date: Nov 2012
Location: Omaha Nebraska
Posts: 142
10 yr Member
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Bram,
Thanks Bram for your kind words of encouragement. I've been both up and down at the same time. I see some improvement with the treatments but I long for home and Darrell and Frank. I did reach a 4. It remains my lowest number yet. I'm still trying to get back at least to a 5 if not a 4 on the pain scale. Something happened last weekend to cause a flare ... most likely stress related. Note too that the flare has not been as severe or as long as previous flares.

My sores are healing, though I do have new sores that still pop up. They are smaller and heal quicker. The redness of my feet and left leg are more often pink rather than red. My overall pain numbers are down even after some activity. Granted that activity is minimal. As you noted, I am trying to stand taller instead of hunched over. I am starting my 6th week. And yes, it does seem like 6 weeks. I've not had to go it alone. Darrell made sure to set up caretakers to watch over me on the weeks that he could not be here. I do feel strong enough now that I might be able to go it alone if had to be.

By this diary, I hope you find some insights into the HBOT process and possible benefits, as you mentioned that you were considering the treatments for yourself. I know that you are suffering a flare of your own right now. I hope you find relief soon. I encourage you to take comfort in your wonderful poetry, if even just for distraction. For me distraction is key when trying to manage through the pain of CRPS/RSD. I've enjoyed your poetry corner. Thank you. I lack the skill.

BTW: I love animation. Ice Age, Toy Story, Shrek, Monsters Incorporated, etc. are examples of excellent graphic animation on the big screen. In another life I would be an animator working for Pixar or Disney or DreamWorks or ... Well, I can dream can't I?
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Djhasty
- CRPS Type II with migraine, Dystonia and spasticity
- Diagnosis 2010 following
- Injury 2004 L5S1; 2nd metatarsal left foot fracture; left hip fracture
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